Hello Neil777, 

I hope that that you will hear from some of our members here who have chosen to go for just radiation and that they will be along shortly to share their experience with you. It is difficult to have to make such an important treatment decision - I imagine you have discussed the pros and cons of all the different options with your specialist. 

Our nurses are available on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm if you would like to talk things through with them. 

Whatever treatment you end up going for, I hope that it goes well and that it is a success. 

Best wishes, 

Lucie, Cancer Chat Moderator

Hi Neil777 I hadn’t tonsil cancer with several affected lymph nodes I had 35 radiotherapy sessions and 2 chemo.

its hard but if I can do it anyone can .

i have a blog www.radioactiveraz.wordpress.com

itbmay give yiu some ideas of what she in store yiu will have a mask made for treatment and possibly a n g tube if eating proofs difficult.

hope this  helps 

Hazel

I've already read some of it, doesn't sound nice at all. I have been given 20 sessions of Radiation, no mention of Chemotherapy as of yet, suppose they'll decide when they see what the radiation as done. I actually just wanna get on with it, been feeling a lot better since my initial diagnosis, was shocked for a week or so. Anyway thanks for your reply, wish you luck for the future. Neil

Hi Neil

i am a 5 ft wimp if I can do it anyone can.  Treatment s brutal but that's ciz where it is our mouth we do everything with eat talk drink etc but your team will give u meds my advise take them don't be brave . Yes once you get a plan things fall into place snd you get a different mind set. If you need anything just nesssge 

Hazel 

Ps the chemo only plays s small part of treatment appx 4% in my case mostly used when lymph nodes are involved so don't worry know plenty who only had radiotherapy and are fine now. 
hazel

Thanks for the positive messages, I'm starting my 20 sessions on the 9th of December, and as a self employed person I've decided to give myself till mid March-April to get back to work, maybe do some little jobs before if I can manage. As for being 5ft you sound like a trooper in your blog. I'm 6ft, about 12stone, 45yrs old, my journey has begun, and after the initial feeling of just doom I am now quite settled & confident that it's gonna work out. Many Thanks Hazel

Today I've noticed a sore on my left ankle which looks perculier, I phoned the nurse and she said the cancer is unlikely to spread from the mouth to the leg, maybe I'm paranoid but got a terrible feeling about it. I'm thinking I should ask for a full body MRI scan, I'm due to start radiotherapy next week and if it's everywhere maybe theirs no point having it. I'm at the stage we're I'm thinking death itself may be easier, read some terrible things on here, last thing I want is to go through treatment then find out it was all for nothing.

Neil

chill out cancers isn’t going to flow through your body to your ankle Yiur mind is reading all sorts into this take strengthfeom my blog and links to the others. I won’t lie then trratments brutal bound to be it’s yiur mouth are we do everythjng with our mouth. But look at little me 27 month down line justbreturned for 9 weeks in Spain I rode my bike 1000 km walked at least 500 km I am living my life’s there’s nit much I can’t eat now spicy  food small price to pay. So please don’t think those thought if I can do it anyone can 

If you want to send a friend request to chat off post please do. Yiu will get there 

Hazel  

Are you h p v positive or don’t you know ?

Hazel

I haven't been told that, so not sure. I think I'm probably run down due to the whole scenario. Just wanna get on with it, got a decent chance so I can only hope it works, thanks for replying, it's a lonely place at times, so your replies mean a lot x