Enzalutamide (Xtandi) experiences

Hi 
Ive just joined the group as my husband was diagnosed In sept and due to start enzolutamide tomorrow !!  He has decided to not read about the side effects unlike me , who is reading everything I can find.  I'm terrified for him. He's never had a days illness in he's life and is now coping with stage 4 prostate. He started the hormone tablets then the injection which no one told him would be a slow release implant In he's stomach.   It's all happened very quickly for us and neither of us know what to expect. Any comments or advise will be gratefully received. 
Thanks 

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Parents
  • Enzalutamide prostate cancer medication side-effects and benefits can differ depending on prostate cancer stage and severity. While some may experience manageable side effects like fatigue or hot flashes, others may encounter more severe symptoms.

  • I was diagnosed stage 4 prostate cancer Easter 2018.  I soon found out that treatment with Enzalutamide was not possible under the NHS, fortunately it was available under my private insurance.  I have continued with it everyday since June 2018 with prostep injections  (under the NHS) every three months.  I have blood tests every three months and my PSA consistently register's at <0.0.My insurers have recently decided to increase the premium by £1,000/month on renewal.  The good news is that Enzalutamide is now available under the NHS, so I'm in the process of changing my supplier to that. As for after effects the  most noticeable is constipation which is manageable others such as hair loss and sexual function have been mentioned by others, although at 87 not really a problem, fatigue is a bit of a problem.  The main benefit of the medication is staying alive, it is also important to keep active.  I recently had an MRI scan as a result of a fall and the specialists were surprised to see that the cancer had not spread any further.

Reply
  • I was diagnosed stage 4 prostate cancer Easter 2018.  I soon found out that treatment with Enzalutamide was not possible under the NHS, fortunately it was available under my private insurance.  I have continued with it everyday since June 2018 with prostep injections  (under the NHS) every three months.  I have blood tests every three months and my PSA consistently register's at <0.0.My insurers have recently decided to increase the premium by £1,000/month on renewal.  The good news is that Enzalutamide is now available under the NHS, so I'm in the process of changing my supplier to that. As for after effects the  most noticeable is constipation which is manageable others such as hair loss and sexual function have been mentioned by others, although at 87 not really a problem, fatigue is a bit of a problem.  The main benefit of the medication is staying alive, it is also important to keep active.  I recently had an MRI scan as a result of a fall and the specialists were surprised to see that the cancer had not spread any further.

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