The hot flushes lessen with time but never go away completely.Body hair will return but takes a while. I take vitaminD3 and eat a lot of cheese as it is important to keep strong bones. Life goes on and should be lived as normally as can be managed. I have memory problems  but I think a memo pad and a pencil could be my next move.

Hello,

After a year on Xtandi I found the hot flushes and fatigue continued but thought of the hot flushes as helpful to keep the heating bills down and keep me warm when out in Winter. Normally nothing to do with the temperature, more to do with if I tried to doing anything with even very little stress.

As far as not being allowed into hospital appointments is that your husband's decision or the hospital. If the hospital then I am sure asking the doctor or specialist nurse at the next appointment should resolve that issue. We have never had a problem as I have always worked on the basis that my diagnosis affects my wife at least as much as myself. So she attends whenever I want her to - other than when I am actually receiving tests etc. If your husband then maybe you could explain that being able to go to appointments might reduce your stress?

Good luck and keep positive.

Hi 

Thanks for that .

Enzalutamide immediately halted the doubling of my PSA level and has, in 3+ months, reduced the PSA from approximately 400 to 5.7! I am feeling MUCH better and functioning MUCH more normally 

Enzalutamide prostate cancer medication side-effects and benefits can differ depending on prostate cancer stage and severity. While some may experience manageable side effects like fatigue or hot flashes, others may encounter more severe symptoms.

I was diagnosed stage 4 prostate cancer Easter 2018.  I soon found out that treatment with Enzalutamide was not possible under the NHS, fortunately it was available under my private insurance.  I have continued with it everyday since June 2018 with prostep injections  (under the NHS) every three months.  I have blood tests every three months and my PSA consistently register's at <0.0.My insurers have recently decided to increase the premium by £1,000/month on renewal.  The good news is that Enzalutamide is now available under the NHS, so I'm in the process of changing my supplier to that. As for after effects the  most noticeable is constipation which is manageable others such as hair loss and sexual function have been mentioned by others, although at 87 not really a problem, fatigue is a bit of a problem.  The main benefit of the medication is staying alive, it is also important to keep active.  I recently had an MRI scan as a result of a fall and the specialists were surprised to see that the cancer had not spread any further.