Cancer and Addisons

Hi all I've been on forum for quite a few years now.

Haven't noticed anyone with both.unless I've missed it .

But thought I'd let people know what's going on with me lately ,

Beginning of the year my PSA (cancer count) rose up quite fast and quite high ,so oncologist put me on New meds, nearly three months ago since then My blood pressure is going mad mainly low so oncologist and Addisons specialist told me to increase my fludrcortizone, for my heart,from 1 1/2 to 2tablets a day, about two weeks later,no improvement so doctor and oncologist tell me to increase to 3 tablets day a week later phone call from Dr stop extra tablet my sodium levels have dropped dangerous levels so i carry on with low BP , spoke to Addisons specialist this morning explained everything everything he told me I should never have increased dose to 3and those tablets would not decrease my sodium levels,its more than likely that My new cancer meds are making My Addisons meds metabolize to fast in my body so they don't last long enough to do there job properly,at last something is making sense.

Now hes arranging a all day blood test at hospital so I have to Go early have tablets with blood test either side by about an hour, morning, lunch and evening,to see if meds are going out of My body to quickly.

Then at least I should know one way or the other than hopefully someone will figure out what to do..

Sorry if I'm ranting a lot but three months of being told one thing then another im getting rather fed up,fed up is rather mild to what I actually think, but thought id keep it clean,.

Hope everyone is keeping safe,keeping positive and keeping fighting.

Billy

  • Hi Billy,

    It seems ages since I came on here, been busy, I suppose, but I can't remember what with! Lol!

    Glad you're not too bad back on the meds. I'm also glad Brenda is feeling good, after the time you both had. I will probably catch you over on Carol's thread, we women seem to have more to chat about to another woman!

    My daughter was able to take early retirement this summer but she hasn't been able to enjoy it properly because of her chronic ME. Hopefully as she settles in to a more restful routine she will be able to come back to life, properly. She was starting to feel better when her brother had a nasty accident, knocked off his motorbike on a roundabout by a lady who hadn't seen him.  He's been lucky to get away with a few broken ribs, a broken nose, split chin, requiring plastic surgery and an arm broken in two places.  He's in a lot of pain, as you can imagine, but he won't admit it to me. He said he had a few scratches and  feeling better every day.  
    Take care, 

    love to you and Brenda

    Christine xx

  • Morning dear Christine. 

    Just thought id tell you about Brenda and me,  

    I was 18 had a car passed my test recently working as apprentice plater when forman gave me someone to help as i had alot of work on (paul, Brenda's son 17 years old).We worked well together ,and decided to go out after work find some girls i went to pick paul up he wasn't quite ready so he invited me in the house and i saw Brenda, intrest in going out vanished, but i did go for paul, i kept thinking how to find out about Brenda without making it obvious. Found out she was a widdow for 3years with 3 sons paul oldest. Earlier that year she was run over by a lorry, it was parked up Brenda went to pass on a push bike lorry pulled out knocking Brenda off her bike and running over her driver stopped and Brenda was trapped between rear wheels, soon plenty of vehicles there but they had to get Brenda out quickly or she would bleed to death so driver had to take his lorry over her again to free her.  Got her to hospital working mainly to save her life, she had crushed leg and broken fingers which wasn't life threatening so was left till another time. 

    Sorry have to get Brenda's brekky (adverts).

    Billy 

  • Crikey, Billy

    Another of life's miracles!  My son must be a cat in another world as he has been badly injured several times in different kinds of "accidents" caused by other people and each time it has been a miracle he wasn't killed.

    I like that it was love at first sight for you when you saw Brenda, a real love story that carries on to this day!  No wonder I say you're my hero!

    Good luck at the oncologist's, sort out those side effects!

    Love

    Christine xx

  • Part 2  Brenda soon went home sooner than she should have done she wanted home to her boys. 

    I met Brenda about a year after her accident, after a while i started taking her shopping, letting her get to know me sat with her for company when the boys were out with their girls, offered to do some wallpapering as she was paying someone and the paper was loose alot of places, idid a good job even if i say so myself. 

    After knowing Brenda for about a year she started with bad stomach pains late afternoon i called Dr 3 times third time threatened him if he didn't come i was calling ambulance, he came checked Brenda over gave her injection and called ambulance, they operated that night, gangrene of the bowl caused by the lorry. 

    I visited every evening after work, other patients thought i was Brenda's son so i decided to tell them we were going out together Brenda was nervous about people knowing thought they would be against it,with me being nearly 14 years younger, they were happy for her. A few months later Brenda in hospital again having her leg put right all the crushed muscles repaired and reshaping leg. 

    After operation i took Brenda to spalding tulip parade she was in a wheelchair but had a lovely day out together doing what we wanted, and started going out regularly sometimes with the boys as well themeparks and zoo's. Once 2 of the boys went boating and fell in playing about. Came and found us dripping lucky i always keep spare clothes in boot as doing site work getting very mucky then changing before driving home, driving home from park with clothes hanging out windows to dry lucky warm day. 

    Not long after Allen youngest son decided Brenda wanted company while everyone was out work and school so persuaded me to take him to rspca kennels nearby he'd saved up for ages but didn't have enough money so we both paid for penny (Cross doby pup)Brenda went loopy but inhours was cuddling her and getting kisses. We decided to train her as family pet and guard dog she was perfect as both.  But couldn't travel in car without being sick. 

    End of part 2 .

  • Part 3  after years of asking Brenda to marry me, my mother was all for it and kept trying to persuade her as well. My mother knew my father didn't like the idea so she kept him out the way or sushed him when he was with us, Brenda never cottoned on i told her after wedding. I finally persuaded her to marry me by promising to look after her when she got old if she needed it. She wasn't so worried about age gap after this time as loads of people had seen us together and thought we were about same age. Wedding was chaos, my car played up (1 December)cold snow and ice. I got there on time. (Register office) time ticked by our turn no bride or best man Brenda's brother and bringing her to wedding.  Next group ready to go in im panicking i managed to hold them off for a few minutes, there just about to go in Brenda appears with brother his car played up,  wedding itself went ok, as soon as we left straight to garage for spare parts in wedding gear then home for reception that went well also. 

    Most of the rest you know just odd bits. 

    2006 i was diagnosed with Addisons after being ill for 6months Brenda had brakedown thinking i was dieing. We got through that and as normal as possible. 

    Billy xxxx 

  • Sorry Billy – I read your story but forgot to reply! Been struggling with grief issues. My counsellor wonders how I managed to function after bottling so much for so long. Tells me I'm still in early stages. Your love story was wonderful to read and brought the right kind of tears to my eyes when you talked about all the wedding chaos. If you can get through that, I thought, you'll get through anything. I mean who goes to the garage for spare parts in their wedding gear? And at the end of it all you have got through so much, all credit to you Billy. It's lovely how Brenda has flourished under your care and got mobility back after you advocated for a change in medication, and more recently helping her escape hospital, sorting out carers etc. I love reading stories of true love. Thank you so much for sharing your story with us, Billy. You certainly cheered me up. Love Rose xxx

  • Hi there Billy..

    Don't get on here much now, but good to see your still around helping others .. so just wanted to say hi .. and Brenda is so lucky to have a love like you both have... so many will never know that love .. 

    So you keep on my buddy ... your amazing ... Chrissie x 

  • Thought I'd put abit of the boys history on keep things interesting. Paul eldest ooh where to start, he bought a car cortina sport did it up respray everything, stopped at pedestrian crossing let old lady cross so far across he said this lady had a look of shock on her face, paul lucky checked behind him and pressed brake pedal hard just as he was hit from behind by a drunk driver completely out of it but for pauls car he would have killed that lady. He was happy to give insurance details for repairs, found out later he was off duty police officer, insurance only paid value of car by age as it was scrap completely twisted body. 

    Soon after paul got married and moved out still visiting now and again. 

    After a visit by a few days Brenda asked me if I'd touched her housekeeping money although she knew i never touched it didn't know where she kept it i always classed it as hers money i gave her to pay bills and bit spare for herself. 

    She then told me paul usto take house money before we knew each other, we both searched but no luck. 

    Brenda decided to phone paul and ask polite, pauls reply was if your going to be like that im not visiting any more. That was over 40 years ago. We here from friends and relatives odd news but nothing more. 

    Eldest son.

  • Middle son, Peter really good hard worker and smoker, started incar garage in store wanted to get mechanic training so garage sent him on a course away he went on his motorbike in afternoon to lodgings arranged through work, never heard anything till police arrived early morning someone found him in ditch half full of water bike on top of him. Police said he'd been run off road as rubber tire marks on fuel tank. At hospital we were told he was in a coma he was bleeding on the brain paralysed down one side, two of the spokes had gone through his knee, nearly we every rib broken, before hed stopped bike he'd gone into a brick bridge over ditch, we visited every evening talking to him about things,always telling him he needed a shave, one evening about 3months later we visited, he was sat up in bed, we stood and stared managed to say hello Peter he smiled with a lopsided grin and managed to lift his good arm pointed at me and said you need a shave, me and Brenda stood there in tears, so people in a coma can hear you, we talked till we were kicked out, alot of things he couldn't remember, we were careful not to over do things as he tired easy. After a few weeks he was moved to special hospital for recovery exercise and speech therapy,we both visited weekly as they said he needed time to get his body and mind going and plenty of rest to keep healing, they also told us he's using different parts of his brain to other people he'd never be perfect but will improve, he'd never have feeling on his left side at all after 3 months he was walking slowly picking things up with his bad arm and coming home. 

    First thing he wanted was a motorbike as he couldn't remember anything about accident. 

    I persuaded him to go to a friend who owns motorbike shop, he finished up with a low powered automatic, if weather wasn't good i always took him out in the car after couple of years persuaded him to take driving lessons for car, he sailed through his disabled test first time so we had to buy him a car, and sold bike. It was worth it, couple of years later he got married and moved out, another left the nest, through the years they had 2 boys they are now married with their own family. 

    Peter never got his knee repaired they said he could drop dead anytime so it wasn't worth operating that was over 40 years ago, he had nerves burnt in spine and freezing plenty of times and various other treatments on permanent morphine and so much pain with walking bad has damaged spine and other leg, he's now in a care home, his wife left him after spending mortgage money for years and spending other money on herself as he trusted her to make payments as he sometimes forgot things. 

    That's Peter. 

  • Third son Allen, he was born over 3months early, Brenda started hemorrhaging so called ambulance and straight in hospital, Allen's lungs weren't formed right yet. Allen got stronger slowly Brenda got sorted and ok again, Brenda was warned another pregnancy and it'd probably kill her. 

    Allen grew up still got pneumonia easily so had to be very careful about cold weather and keeping warm. 

    He was first to get married to his school sweetheart,alen worked for an industrial painting firm he enjoyed it but had to be careful of fumes off paint. 

    They started married life in dingy little house and saved up to buy something nice, which they did they had a daughter (Marie)couple of years later problems cropped up, only guessing but think mortgage, she went home to her mother. Days later Allen phoned us saying Karen's gone and he's had enough he sounded drunk but he didn't drink we went searching for him found him outside a telephone box,he admitted he'd taken alot of painkillers so we took him to hospital they pumped him out, he admitted he was trying to kill himself so Karen would get the insurance and pay the house, i explained that suicide doesn't pay out so that wouldn't work, let him go home after i said I'd have a word with Karen,  Karen's mum wouldn't let us talk to her even when i explained everything. Next thing we know Allen's been hit by a car jumped in front of it, he's in hospital, we visit he's in normal bed unctuous covered in bruises, wouldn't let us stay long or tell us anything. 

    Allen died that night, we buried him with his father Brenda's first husband,

    .   (Insurance paid up Karen sold home and moved in with her mum.,

      ,. Brenda said she wants cremation Same as me so, we can be together. Now she wants to be with her first husband as she promised him. If Brenda goes first I'll put her ashes with her first husband as she wants. Don't like it but it's what she wants, she usto tell me he beat her and spent her house money came home drunk, but Brenda can't remember that or time we had together just odd things she can remember about us. 

    Xxx Billy