Hi Brian ,if i remember right (cotton wool brain not helping) adrenaline rush is controlled by certain glands so that could be why no rush .

Hope specialist told you your immune system is shot down as well , hydrocortisone does improve it but if you get ill you need increase your hydrocortisone intake to help body fight infection even common cold, although I think your glands are working so much or you would be on fludrocortisone as well,. Cannot remember if you had a 24 hour water sample and 12 hour blood tests to check hydrocortisone is staying in body properly and make sure dose is right .

Trying to get fit is a problem but can be done just takes alot longer than normal  .

Hope things go smoothly for you now you've a stable carcinoma getting sorted Addison's wise over Christmas . keeping positive is a good help ,and we called how you feel as the new normal,we All feel different once cancer is around us .

Take care keep positive and safe .

Billy

Hi Billy 

never had a 24hour water test  but my cortisol levels are good being controlled by the hydrocortisone ,although it is like a self medicating prescription if there is any infection which has happened ,the general rule is double the dose for 6 days  or till the infection is under control ,but I find a quick call to the hotline or your local hospice can sort you out ,they tend to be on top by calling me every 2 weeks ,

I don't know how bad your energy levels but mine go as far as getting up and a quick wash then 30 mins to recover or up and down the stairs a few times then it's a struggle to go up a third time ,but no one has told me why this is happening as my heart and lungs are fine even though my  O2 drops and heart rate goes over 110bpm ,so it is a mystery to me till I see the specialist whoever he might be ,so we go on cos we are still here 

Brian 

Hi Brian.    Before I was diagnosed i was struggling at work with lack of energy, metal fabrication and welding,we had a trolley with 18in numatic tyres and pulling it ten feet and id had it completely out of breath and sweating like mad even outside in winter,I found out later the glands, slowly shut down the body hence struggling and you lose strength ,it takes alot longer to get strength and energy back,then to lose it ,Took me years and still not as good as before illness . but 70 years old doesn't help

Take care keep positive and safe.

Billy

Hi all my cancer frends.

Just another update BP is up to 105/60 most days now energy improving but still bad days now and again cancer count 0.14 has been lower so keeping eyes on it.

Brenda is still improving getting back to normal (Very bossy, but after 50 +years together im usto it.

Head still useless trying jigsaws to get it going.

Hope you are all keeping positive and safe especially traveling.

Billy .

Hi all my dear cancer frends .

Chaos lately started feeling better and BP rose over yippee, then started lacking energy again, BP ok just over 100 ,.mostly.   my darling Brenda had uti and problem getting antibiotics and she went really high throwing things about moving things around continues talk about anything and everything, carer called police said i was at risk, they called ambulance,in hospital till hit a nurse so assessed and put in psychiatric hospital. Bella could have cancer having op Friday to remove lump and test it  .so as i say chaos . Hope others are having better luck .

Brenda complained her mobility scooter wasn't very red, her favourite colour, I've managed to paint it nearly all red .took a few days. 

Take care all keep positive and sure. 

Billy

Hi Billy 

Hope the chaos is in retreat and that Brenda's uti is responding to treatment. Also fingers crossed for Bella.

Take care

Billy,

Sorry you're having such a tough time. Hope change in meds helps. Low BP and low energy makes life very tough.

Sorry to read Brenda got sectioned. At least she's happy. 

Also sorry to read about Bella. Hope she's still able to enjoy some tasty meals. 

His nibs a lot worse. Thought NHS wrote him off, but maybe not quite yet. I'll post an update in a few months. 

Take care, Billy! 

Hi dear Jess,im always very cautious when they mention changing meds for my cancer,as couple of times they have reacted with my Addison meds and put me in a coma and it can kill me after coma.  I've got both oncologist and endocrinologist,(glandular specialist (Addisons)), trying things which could work but got to try then she what happens with me,(bit of a guinea pig.).

i always take Brenda her favourite sweets and drink, she loves lemon sherbet, and grape juice .

Hope weather is nice where you are, cloud and cold here . been out to shop on scooter well covered up.

Take care keep safe and positive .

Love Billy xxxx

Hi there my ol buddy ....

So sorry to here your lass is in unit ... life is really not fare to you ... and yet you still reach out to others ... how amazing is our new lass Jess.... if every one was like her, the world would be a kinder place ... I'm so glad to see everyone holding her hand ... 

Well don't get on here much now ... looking after grandkids takes so much energy, but I adore them, any ways wanted you to know I'm thinking of you ... hope bellas lump turns out not too bad... big vertual hug as always Chrissie xx