Hi all my cancer friends and all new forum people.  Brenda had second covid vaccine week last Friday two days later had Tia next day another Tia and a fit , called neighbor and she called ambulance,it was 1 1/2 hours coming so brenda was feeling alot better, she was checked over and ok but I wanted her in hospital in case of another one, that was 8oclock at night,at 5 in morning hospital phoned me wanting her out of ward I could hear her in the background shouting, hospital didn't give her any of her meds that night especially sleeping tablets they just wanted her out. Luckily she's been ok since, apart from completely incontinent now.

I had second covid astra jab Friday struggling to keep awake through weekend,same with first jab. Rather orquard when looking after bren. PSA is0.3 so getting there.

Got a new walker so she can get about easier especially outside she loves it its a seat and two bags on board so easy to take things around.she always looks ahead never where walker is going.

Hope all my cancer friends are still positive and fighting

Love to all Billy xxxx

Hi all.  Another update feeling better now, BP still low but hey ho that's life, got phone call from endocrinologist (Addison specialist) got to go to main hospital rather than local small one for a blood test,he says it needs spinning asap after blood taken to get proper results, luckily not till middle of June.

PSA still going down so good news.

Brenda still good despite problems lately loves going out to back garden listening to radio.

Hope all my cancer friends are managing well.

Take care keep safe.

Billy xxxx

Hi all my cancer friends.

Another update, still feel ok , still improving slowly and BP low. So going steady.

Driving a bit more, again steady and careful, especially now I'm 70(Sunday last ) ,. main problem is now All my teeth have gone rotten all at same time, only thing I can think is its those tablets again,no way we're they perfect but, All at once is over the top,got dentist today thinking of top lot out,then bottom out later don't fancy All at once.

Brenda is getting more mobile still determined to go out but sence enough to come in before it to hot .

Hope all my friends are as good health as possible and not getting to much .sun.

Take care still keep safe.

Love Billy xxxx

Hi Billy..

Oh bless that must be really hard with all teeth being effected .... they are trouble when they come in .. trouble through life with teeth and even worse when they go .... but fingers crossed for your appointment ... good news Bren is feeling a tad brighter ...

Sending a vertual hug as always.... Chrissie x x 

Hi all my forum friends just an update.

I'm still on those tablets which cause all the problems.but no choice.  Otherwise I'm managing ok.

Brenda was in A&E other day I phoned do as worried about her migraine incase it was Tia again he said he'd get prescription for stronger painkillers, three minutes later called said hed arrange hospital appointment 3minates later said Go to A and E. Asap she had blood tests and CT scan,.scan was clear then they wanted her to stay in and have MRI but she wanted home wouldn't change her mind about it. waiting for MRI appointment to be arranged.She's typical female very stubborn.

Bella is still being her usual self sleep and eat still having walks.

Take care my friends.

Love Billy xxxx

Morning my forum friends.another update .

Nothing really changed with anything , still low BP so have to take it easy.

Doing a bit more driving short journeys only, . brenda still improving slowly, she's had a few UTI, with being fully incontinent,I wash her as much as possible and shower every evening before bed.

Bella still spoilt propper.

Hope all my forum friends are doing well.

Billy

Hi all my friends.

Good news finally PSA is 0.04 has been for two months now.

My Enzalutamide dose is down to 80 mg from 160 , endocrinologist changed the dose and stopped my Clonidine completely as can drop BP , BP now is 90+to 105 so alot better and I'm feeling more normal with more energy and no giddyness now just have to exercise more now but age doesn't help.

Got mobility scooter each so parking outside shop window no tax and mot, still plenty of room for shopping bags , shame no heater or, radio yet..

Hope all my friends are keeping positive and sure.Take care weather is cold now.

Love Billy xxxx

Hi all ,up early brenda had a bad dream, shouting and crying .

Feeling good in myself just lacking energy back to doing a few jobs around the house , shelving and things I couldn't do before.

No change in me BP still same, we've both had booster for covid weather colder so careful about going out well covered up when have to . Brenda claimed my thermal trousers , I've another pair somewhere  have to find them.still got thermal shirt so far, usto use at work .

Getting presents and cards done ready for posting or delivery.

Tree up and some trimmings.

Love to all .

Billy

Hi Billy

been a while since we spoke ,but I haven't been positively diagnosed with Addisons but I only have minimum function with my adrenal glands as a side affect of immunotherapy for stage 4 renal ,and lymph node cancer ,which surprisingly  is now classed as STABLE  ,wow hard to believe ,but there is always an ulterior motive to this devilish disease ,I am now left with a energy level of a sloth ,and after a day of tests and my inability to provide a good vein for a ct scan after several attempts and my arms black and blue from blown veins ,all my bloods are ok ,so heart lungs etc. are all functioning well ,which leaves me with a stable carcinoma  hurrah ,and useless adrenal glands which are controlled with hydrocortisone tablets for life ,but no answers as to why I have no energy after minutes of activity and not able to walk more than 50 yards . has anyone got any answers ? Well referral to a specialist in the near future is being organized ,I can only thank my hospital  and local hospice for their excellent care and treatment which has given me chance for a great Christmas ,I'm not too worried about the outcome in fact I find a strange affect on my mood is to have no compassion or feelings and no fear at all it feels like I have no adrenaline rushes at all , strange ,maybe hydrocortisone does not cover  the function of adrenal glands but thanks to you all as I am still here and hope you too have a wonderful Xmas 

Merry  Christmas to you all 

Brian