Immunotherapy

Hi, does anyone have any info about when immunotherapy treatment comes to an end after two years? If the response has been good (ie it has been classed as terminal but scan shows "no change"; can it be offered again, and if not, why not and what are the options? I understand ever case is different but interested to hear others experiences of this and would appreciate any advice. Thank you. 

Parents
  • I cant say much about finishing after 2 years as i am still getting treatment, I was given 2 to 3 months left

    2.5 years ago and was put into a trial treatment. since then My tumors have shrunk considerably, i can eat and walk short distances.

    The trial ended about 4 months ago but they kept me on the treatment.The major side effect for me is intense itching which became infected. I cant seem to get relief from it and cant explain just how intense the itching is. I have been given steriod creams that help a little but i have scars now where i scratch in my sleep.

    All said and done, I feel good, having these extra years with my family.

    I find it hard to talk about my illness to any of my family at times because i dont want to keep bringing them down with me when i get depressed, although they are great and try too hard to look after me.

    talking to others at the treatment center seems to be the best way to share my experience.

    I wish every one here all the best and my thoughts are with you all.

    James

Reply
  • I cant say much about finishing after 2 years as i am still getting treatment, I was given 2 to 3 months left

    2.5 years ago and was put into a trial treatment. since then My tumors have shrunk considerably, i can eat and walk short distances.

    The trial ended about 4 months ago but they kept me on the treatment.The major side effect for me is intense itching which became infected. I cant seem to get relief from it and cant explain just how intense the itching is. I have been given steriod creams that help a little but i have scars now where i scratch in my sleep.

    All said and done, I feel good, having these extra years with my family.

    I find it hard to talk about my illness to any of my family at times because i dont want to keep bringing them down with me when i get depressed, although they are great and try too hard to look after me.

    talking to others at the treatment center seems to be the best way to share my experience.

    I wish every one here all the best and my thoughts are with you all.

    James

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