Tonsil cancer - Considering stopping treatment?

Hi All

 

Im a 47 year old male, ex smoker (quit ten years+ ago but used NRT for ages) who was diagnosed with tonsil cancer in may, it has spread to my one lymph node- but the hpv16+ status is apparently a good thing.

 

Ive just finished my first week of chemo and radio and so far dont have many symptoms (dry mouth and mild discomfort in my neck)

 

But i know that things are set to get worse, and that the chemo might kill me (infection) that the radio might kill me (infection and necrosis of the jaw) and that even in a best case scenario ill end up with a feeding tube etc

 

All this scares the life out of me, to the point where i feel almost as if i would trade 'possibly' being cured with all the guaranteed problems and risk of sudden death, for a couple of good years making the most of the time i have.

 

Added to which i am constantly in fear of covid when i go to the hospital. I see patients and even the odd staff without masks every day i attend radio.

 

Has anyone considered this option? and how do they deal with family if so? I know how my family would react and it would not be good- but it is my body.

 

 

Thanks

  • Hi 

    Given your diagnosis the prognosis is very good. The treatment is hard and during my own journey for the same condition I too felt very low and terribly pessimistic. In my last week of radiotherapy I seriously considered discontinuing treatment as I felt so ill. Much of what you have suggested is familiar ground.  Dark thoughts during a personal crisis. 

    However I stuck with it. Within a few weeks afterwards everything improved rapidly and finally I could see beyond it all with great relief. 

    I would respectfully suggest you have a chat with your hospital cancer support group. That might help see you through this dark time and gain some positivity. 

    I am 18 months post treatment and recovered fine. It is easy to overthink it all and dr google provides far too much scary info.   

    Check out Gary’s (Vatch) blog on a similar condition and his recovery. It certainly provides a much needed positivity. 

     

    gammaraygary.wordpress.com

     

    Quitting is not a great option when it is quite possible that you could be looking back on it all in a few years with it all well and truly behind you. 

     

    All the best. 

     

    Paul

     

  • Hi Paul

     

    Treatment has hit a snag - in that they found a tumor had been missed on the mri (parotid gland) and i need to have treatment 'reset' now to rework it out, i dont know how the heck i got two unrelated tumours but such is life

     

    Its really helpful to hear it is not me that is going crazy and that others have these mood swings. I constantly have to keep a positive front up with family etc - even when i dont feel it.

     

    Really glad you got through it!!! and i will look at the blog, thanks

     

     

  • Please don't even think this .... I did too if I'm honest , but I am now 12 weeks post treatment & getting better each and every day . I never thought I would get to this point because it hasn't been easy .its a brutal treatment but has the very best outcome . Please don't stop. My cancer was also HPV but not tonsil , base of tongue . I am feeling very positive . X x