Only partial response to chemo

After my horrible sessions of chemo, my scan revealed the chemo had put holes into my tumour but hadn't shrunk it enough to warrant a successful lumpectomy, I opted for single mastectomy with lymph nodes removal. After op I was told there were still active cancer cells in tumour. I was told by my surgeon that I will need more chemotherapy treatment as well as radiotherapy. I'm devastated. I'm currently receiving Herceptin injections every three weeks. I cannot face the awful chemo again. If it had little effect with first session I can't understand why another lot of awful sessions will be needed. Surely radiation will mop up any stray cancer cells. My oncologist is on holiday so no idea when I will be speaking to her about what surgeon told me. I feel so depressed, as I was assured that the neoadjuvant chemo was highly successful. I was not told it wasn't guaranteed. All through my awful chemo sessions I was given positive messages that it would be all worthwhile and would be killing the cancer. I was even given a clip inserted into tumour just incase it completely obliterated it, so they'd know where it originally was. I was left  with a 5cm tumour instead of a 6cm I've with a few holes in it. I really don't want to have more chemo. It has been 8 weeks since last session, and I've still not got my full sense of taste back, so food tastes bland. My hair has just started to grow back, and that had cheered me up. I was feeling so happy after my end of chemo sessions and people telling me the worst was over now it was finished. Even the mastectomy didn't bother me. I'm still in pain with lymph node removal but it's only been just under two weeks and seems to be getting a bit less painful each day. I can't stop crying when I think of going through chemo again. I've got a telephone appointment with a doctor regarding my radiotherapy treatment next Tuesday, so I'm hoping I'll be having that soon and not chemo. I just want them to be totally honest with me now, and not give me false hope, to then me feeling so disappointed, and disillusioned when it doesn't turn out like I've been told it would. I've got cancer trying to kill me, and I can't even hug my son and grandson because of this virus that could possibly kill me too. Sorry for the rant. I'm just feeling sorry for myself and a bit angry at the world right now. I'll feel better once I've had a good old cry. 

Parents
  • Hi kajay. 

    I can understand where you are coming from with disappointment for treatment but remember it did shrink it some. 

    I'm on palliative care since February 2016 prostate Cancer gone to lymph nodes, spine, ribs, pelvis and a lung. Had chemo which stopped and shrunk it some then i wait for it to start spreading again. I call it my uninvited guest. Just been having more scans and blood test because it it decided to bite me the other month. Main thing is keeping positive and keep fighting nomatter what.. 

    Good luck with whatever treatment you have next. 

    Billy 

     

Reply
  • Hi kajay. 

    I can understand where you are coming from with disappointment for treatment but remember it did shrink it some. 

    I'm on palliative care since February 2016 prostate Cancer gone to lymph nodes, spine, ribs, pelvis and a lung. Had chemo which stopped and shrunk it some then i wait for it to start spreading again. I call it my uninvited guest. Just been having more scans and blood test because it it decided to bite me the other month. Main thing is keeping positive and keep fighting nomatter what.. 

    Good luck with whatever treatment you have next. 

    Billy 

     

Children
  • Hi Billy, yes it did shrink it a little. Surgeon said they'd managed to get all tumour out, as well as lymph nodes cancers. I just wished they'd told me it was possible I might need further chemo, instead of building my hopes up so high. This time I'll be going for treatment in a completely different head space. So sorry for your cancer situation, and you sound like you've accepted it. I hope eventually I'll accept mine. As long as they're honest with me, I will be. 

  • Hi kajay. 

    Don't know if it's acceptance or I've got to keep going, I'm looking after my disabled wife she needs 24 /7 care she has Alzheimers and parkinsons plus a few other problems. I had to promise I'd look after her before she'd marry me she's nearly 14years older than me we've been married nearly 50 years so haven't done bad

    , main thing is being positive, thinking you are go to beat it nomatter what., as [@Chriss]‍ ‍ says get your pink boxing gloves on and give it what for.you can swear if you want aswell. 

    Billy 

     

  • Wow, you are such a strong person. I admire your strength. And, you're looking after your wife with her illness too. I'm having a small blip. I think I'll be okay once I've had chat with Oncoligist. I've had a letter through today. Will be speaking to her a week next Thursday. Once I hear my options, and decide what I'm going to do, I'll just get on with it. Thanks for reply :)