Relapse

Hi all, I had a stem cell replacement in January 2017 and have been in remission until November 2019. In March 2019 I had a biopsy that found I had a myeloma cell plasma mass and was told I would have radiotherapy.  In April I found I had another lump in my groin area. I saw a different consultant for a reason unknown to me and she told me she would organise a pet scan and radiotherapy for both lumps.  She went to see my usual consultant and 5 mins later came back and informed me I was to have a second stem cell replacement.  From that point it was though I was in a fog as I was originally told you only get 2 replacements. Before I commenced taking all the medication they gave me, the lump in my groin disappeared.  I have asked for tests to confirm the second mass is/was myeloma because I feel the 2nd replacement should not go ahead without 100% proof. Has anyone had anything similar and/or had a lump that disappeared?

  • Hello Ultrasharp, 

    I can understand why you are feeling in a fog at the moment and feel confused by it all especially since the lump in your groin has now disappeared. You've done the right thing to bring this up and to ask for more tests to confirm.  Make sure you mention to your consultant that you now feel that this lump is no longer there and if they could double check things for you.  

    I hope that you will hear from the experiences of others here who have been in a similar position and have had a lump before that they felt had disappeared. 

    Our nurses are also available on this free number 0808 800 4040 if you wanted to talk to them about all this. You can call them Monday to Friday from 9am to 5pm. 

    I hope you find out more soon about this second stem cell replacement. 

    Best wishes, 

    Lucie, Cancer Chat Moderator