Hi,

I was diagnosed with kidney cancer back in November 2019. I had to have a total nephrectomy (my kidney removed). Prior to having this, I was looking after my wife and mother who were both having treatment for cancer. My mother sadly died of this, her death was the worst thing I have ever witnessed. To this day it haunts me. My mental health has not been the best since. When I received the news I had cancer I was never given a specialist nurse, unlike my mother and wife. In fact I've never spoken to one. I got told you have cancer and we will remove your kidney. That's basically it. I had my kidney removed in early December and I have not heard from the hospital since, except from my consultant yesterday who said that a scan has been organised to see how my other kidney is holding up and that he will arrange with my specialist nurse to go through it with me.

I've never had a specialist nurse.

At what point do specialist nurses become involved in your care? At point of diagnosis or six months later?

I asked my consultant and he said I should have had one and is quite concerned that I haven't had any contact over my care since December.

Any help or information.on this would be great.

Thanks again

Dave.