I am so sorry to hear about your diagnosis. I am currently waiting biopsy results for NPC and would like to hear about your journey so far. This is an incredibly difficult time to receive such news and I hope your are managing ok. Best wishes Deborah
Hi Deborah how are you. Thanks for reading my post. I wish you only good news ahead. I started out with cold and flu symptoms that originally went away with antibiotics. Then a month or so ago I went to see ENT specialist for a biopsy. He couldn't get a biopsy tissue from one side as the nostril was very narrow due to the bone cartilage not being straight. He tried hard under local anesthetiser but could only get dead tissue. I had ct and mri scans but nothing conclusive. Blood tests were normal. I have visited ENT specialists who say I have NPC and oncology specialist who say different. I'm waiting for the operation to clean out my nasel passages and to try and get a biopsy tissue. The ENT specialist wants to clean up all the dead tissue and do a skin graft to repair inside. I gotta say Deborah I feel very down with headaches, mucus discharge and a sore throat and can't wait to get started on the treatments whatever they may be. I feel like I have a hangover everyday. Thanks for listening Deborah.
Hi Deborah how are you. Any news yet on your biopsy. Praying with you. I'm still at home waiting for the hospital to call. Take care and I will keep you posted. Regards Ian.
Thank you. No news yet unfortunately. I feel like I've been to hell and back these last two weeks.
I phoned my consultant's secretary yesterday to try and find out when I would be contacted. I was already nervous phoning and she couldn't have been more rude if she tried. Initially, by answering the phone saying 'hello' which caught me off guard and it just went downhill from there. I can't justify that type of attitude even in the current circumstances. The end of the conversation went like this "your results are in his basket so he'll phone you on Wednesday ok bye" then hung up.
Have you had any news about an appointment for your surgery/biopsy yet?
So sorry to hear that. No compassion at all. Don't upset yourself any more. Just wish for the best news and find out how to fix your problem. I don't have a schedule yet which is playing with my mind and health. I hate being in pain. I'm sure I will get an answer this week. Take care Deborah. Chat soon.
Thanks so much Deborah. Being in limbo is worse as you know. Just look forward to speaking with your Dr. take care and chat soon. Sweet dreams. Regards Ian.
Good morning Deborah how are you. Any news. I got a call from the hospital yesterday and I will go to hospital next Monday. Good news. I will have corona virus checks and ct before they confirm the surgery day. You hang tough Deborah and thanks for your support. Regards Ian.
Good morning Deborah how are you feeling. What's the latest. I had the operation to clean the dead tissue from behind my nose in order to find some healthy tissue to get a biopsy done. I get the results next Thursday the 4th of June. Trust your ok buddy.
Hello can I join this post? I'm Lynn, 46 and finished treatment for NPC in Feb. Please do ask if you have any questions, I'm happy to help (we are few and far between, there isn't many of us!)
So glad you joined Lynn as I'm nervous about the skull base surgery. What stage was your cancer. Surgery is more common because of the cancer location behind the nose rather than radiotherapy. How are you feeling following your treatment Lynn. So happy for you to share Lynn. Regards Ian.
