HI everyone
have you all found that the NHS has stopped your PUVA treatment because of the CoronaVirus? I was just 5 weeks into my treatment and in the last 10 days the infernal itching had actually slowed down. Now I was sent packing with nothing other than contact your GP for cortisone cream. They said that it will be a minimum of 3 months before treatment starts but more likely 6 months. I have at least 30% of my body covered in the rash and this appeared within 6 months so I am guessing my is not indolent and feel totally left alone in this.
I am investigating the purchase of a UVB light as the ointment takes at least 20 minutes to apply and I am getting through a tube a week so thinking the UVB light might be a good purhcase. It's diy healthcare when the government promised cancer patients would be looked after. Ha! Let me know if any of you have invested in a light and if it has helped.
thanks