Hi there  I'm up too...long nights short days!!! I have the same type and its rare and under researched because its rare. What chemo mix are you on? I was already warned about the hair loss so have wigs ordered along with scarves bandana hats etc. How has your first treatment gone......I'm utterly terrified! Dont hesitate to chat. Lorna

Hiya am on PRRT treatment. I've had one. Due next one in April. Just got a bit of a fright when it fell out so bad. Was coming away in my hands as I washed it. Am here to chat too. Am new to this page so still navigating it lol! Take care and good luck with your treatment