Tamoxifen side effects for Stage 1 breast cancer

I was diagnosed with Stage 1 breast cancer just before Christmas and had a lumpectomy and removal of 2 lymph nodes, which are clear, at the beginning of January. I recovered really well but went I started taking Tamoxifen after 2 weeks I experienced depleted energy, sick and dizzy, horrendous hot sweats day and night when I dripped with sweat and itching in my armpit and painful operation site. I felt so unwell I stopped taking the Tamoxifen and within 2 days felt 'normal'. However, I rang my surgery and they said I had to take them and prescribed 37.5mg Venlafaxine which is an antidepressant but is supposed to help with side effects. I'm coping so far but I reach the two week mark later this week and am worried I won't be able to cope with the return of the previous symptoms. I feel very tired and lethargic but not sure if it's the Tamoxifen or Venlafaxine.  I see the oncologist later this week, so will find out if I need radiotherapy. Any advice would be gratefully received!  

Parents
  • Hi Jennyr

    I know Tamoxifen is a pain, been there done that, but I had never considered coming off it as it was prescribed in order to cut the risk of the cancer returning. Its a life saving drug and would much rather have the side effects of tamoxifen rather than the side effects of chemo if the cancer came back. 

    I would discuss it with your oncologist and see what else they think may help, I increased the amount of exercise I did which helped, especially swimming that helped with my joints. I am now on Anastrozole and take sertralin to help with the hot flushes/sweats and within a week of taking it the hot flushes stopped so my antidepressant worked and I felt back to my old self. 

    Don't give up on tamoxifen, if one brand doesn't work for you try another, the best tamoxifen brand for me was TEVA  but it may be another brand that works for you but you do have to give it 6 months to settle.

  • Thank you Magpiemaggie. I'm seeing the oncologist on Friday so hopefully will have time to discuss my medication. I'm just hoping I don't have to have radiotherapy. 

Reply Children
  • Hello ladies really difficult finding the one that works, I started approx on Tomoxifen 4 weeks ago and I can't remember the manufacture name but it was in a blue and white box which seemed ok after a few weeks apart from hot flushes ad feeling somewhat tearful.

     

    I have had a lumpectomy and one or two lymph glands removed.  Has anyone had the radiotherapy as this reduces the risk further of a recurrence.