Tamoxifen side effects for Stage 1 breast cancer

I was diagnosed with Stage 1 breast cancer just before Christmas and had a lumpectomy and removal of 2 lymph nodes, which are clear, at the beginning of January. I recovered really well but went I started taking Tamoxifen after 2 weeks I experienced depleted energy, sick and dizzy, horrendous hot sweats day and night when I dripped with sweat and itching in my armpit and painful operation site. I felt so unwell I stopped taking the Tamoxifen and within 2 days felt 'normal'. However, I rang my surgery and they said I had to take them and prescribed 37.5mg Venlafaxine which is an antidepressant but is supposed to help with side effects. I'm coping so far but I reach the two week mark later this week and am worried I won't be able to cope with the return of the previous symptoms. I feel very tired and lethargic but not sure if it's the Tamoxifen or Venlafaxine.  I see the oncologist later this week, so will find out if I need radiotherapy. Any advice would be gratefully received!  

Parents
  • Hi there ..

    I know exactly how debilitating tamoxifen is .. so my heart goes out to you ... I've got arthritis and scoliosis and stenosis in spine and other joints, so after two years , I couldn't move.. even getting out of bed hurt .. so I asked for the facts and I was told the % of this 3% improvement... as it stops the oestrogen and when our cancers are oestrogen based it can stop them attaching without it...

    I couldn't carry on like that, so gradually came off .. now my pain is manageable... but I'm worried you were ordered not to stop it .. I have an amazing surgeon who has supported me all the way .. I didn't stop it lightly.. I weighed everything up .. and my age and health ... 

    So ask for the percentage.. ask for the facts .. and remember you just maybe one of the 3% it helps .. but I'm sure you cannot be forced to do anything .. but they probly have your interest at heart .. they just don't realise how horendious it is to feel so much pain, and eleven worse was the rollercoaster of emotion .. 

    But you must decide what's right for you ... Chrissie x

  • Thanks Chriss. I'm going to talk to the oncologist on Friday. I just feel sooo tired and arthritis pain that is normally bearable is worse. A joint in my wrist has come up in so it's difficult to write. I've forced myself to attend my twice weekly ballet class but it's a struggle. I'll see what Friday brings. Thanks for your message. 

Reply
  • Thanks Chriss. I'm going to talk to the oncologist on Friday. I just feel sooo tired and arthritis pain that is normally bearable is worse. A joint in my wrist has come up in so it's difficult to write. I've forced myself to attend my twice weekly ballet class but it's a struggle. I'll see what Friday brings. Thanks for your message. 

Children
No Data