Bilateral mastectomy reconstruction decision

Hi all,

I've been recommended to have a bilateral mastecotmy due to three cancers over both sides, and a mutated ATM gene. I've seen two surgeons who have said the complete opposite.

I'm nearing end of chemo. I want immediate recon, I want the same both sides, and will be having three weeks rads to right. Sorry this is a long one but after some thoughts as I have a huge decision to make. Sorry it's long! 

My inital breast surgeon said DIEP is best, will be smaller but implants they just wont do with rads. I saw my sister's surgeon who she was very pleased with, and a plastic surgeon at my hospital. I've got a third opinion booked in a couple of weeks but wondering people's experiences:

a) DIEP - my surgeon says there's not enough for two. Sister's one says there is. I don't know, think there might be maybe 70-80% depending how much round the side they use (if the iniscion goes to the hip can they take fat to there?). This is what I was expecting really until my plastic surgeon said not possible. Anyone else had them say this and it's been enough? Implants an option to bolster until fat grafting in a year, is that a thing? Problems? 

b) Implants - sister's surgeon says to do this and then see in a year or so, can either stick with if not damaged by rads or do diep then. I was initally against plastic in me but perhaps pert boobs is a bonus. But will have to be replaced, I believe at my own cost, every ~10 years. My hospital just wont to this but could use my sister's surgeon and 

c) LD flap - sister's surgeon is against doing this for bilateral, mine I think thinks is the best option. I'm worried with mobility for sailing. Also will still need implant whihch might still be damaged though and will have to be replaced at my own cost, every ~10 years. 

(other flaps not options we're all agreed).

Input appreciated and well done and thanks if you've got this far!!

E. 

  • Hiya, dont know the score for a double mastectomy reconstruction, I had an old implant that had been in for over 40 years removed when they took out my tumour, and had immediate reconstruction, which is still settling down. I was born with a deformed chest (depressed sternum/Poland syndrome with ribs going in on the side that got cancer)  The implant filled in the pothole shape in my chest wall.  WHen it came to the operation, surgeon said later that he had toyed with idea of putting an implant in upside down to fill the dent, with another one on top right ways up!  I just ended up with one, to make the mound, and it spared a nipple, although  I have a scar under a scar going out to armpit where they took out the old implant, and scars round the nipple, so its a mess at the moment.  It is probably early days to decide if I will need further filling up!  So much depends on stage position and risk of spread etc. I was node negative, and could probably have got away with lumpectomy and radiotherapy if the ancient implant wasnt an issue, but hey ho, I was 18 when I got it, felt very shy and deformed, and was bullied through school with no confidence because of my mis shapen self.  I guess my new chicken fillet prosthesis is preferable to what I had as a teen,  but it still doesnt feel like the sort of thing I want to wear regularly until the scars are less tender, and gosh am I bored with my M&S flexifit bras, they are comfy, but oh dear, hardly thrills and frills, recommended as an option for when you need something sturdy if you do go for recon, but if you do, Id suggest getting one of those bra extenders, I swelled up in places I didnt know I had, and it took several weeks to shorten the extender bit as the swelling went down. Im rattling on, sorry, but I really do wish you the best of advice and best of luck with your choices and future treatment. Let us know how it works out. all best hugs x