Hi Ross2991 

It's so strange to read your post as I am in hospital as I message now with exactly the same thing. I've had all the tests and they have come back that I don't have any heart damage or disease to my heart or lungs. I had a resting heart rate before of 71 and it was around 110. More concerning was when I was walking around the house or up the stairs the heart rate would shoot up to 165-194. Because of this I was admitted. They have put me on beta blockers now and that's brought it down to 86 bpm resting. They have tested me for a rare form of pneumonia that the doctors refer to as PCP. It's a type of fungus that grows slowly in your lungs and doesn't display normal side effects of pneumonia for many months. But one of the side effects of this illness is tachycardia. i would ask your medical team if they have tested for that.
I would be keen to hear back from you though in any event as the doctors here are completely baffled and haven't heard of this before. But now I've found you so there is obviously something going on. I have breast cancer and I've been on FEC-T and Paclitaxel I've had 11 rounds of chemo but they cancelled my last one because of this tachycardia. 

Hi [@naosei]‍ 

I know it's been a while since your post but just wondered how you're getting on? I'm really struggling with my heartrate these last few weeks. I've been given a couple of blood transfusions but I'm not sure they've helped - don't know if it's just the accumulation of fatigue getting me now but even walking around the house has my heart up. It's really a nightmare. When I am fully relaxed and asleep I can get down to a resting rate of 78 so I don't think they want me on beta blockers for that reason but equally I can't keep having it skyrocket the moment I get up to do anything. Did anything come of your tests?

Wishing you all the best

Rose

Hi  

All my tests came back clear. I don't have PCP or anything they can see wrong with my heart following CT, MRI and echo. They are confused and not sure what's happening. I have a cardiologist appointment on 10th January so hopefully I'll get more info then. 
I am still on beta blockers but they have upped my dose as it started to go back up again. 
My resting heart rate was 106 but with the beta blockers is now down again to 76. But as soon as I do anything, even something small like get changed, walk up the stairs in my house or walk from the car park to the hospital it shoots up to 130+ 

ive been doing some research of my own ready for my cardiologist appointment and have found a rare and little understood heart condition called 'inappropriate sinus tachycardia' and it sounds like I might have that. I will raise it with the cardiologist when I see them in January. I've also spoken informally with a cardiologist doctor (not from my hospital team just randomly met them in the street when I was struggling they came to see if I was ok)  who said maybe the docetaxel that causes nerve damage has damaged the nerves of my heart that regulate the electrical impulses that regulate the heart rate. That would make sense as I have neuropathy in my fingers and feet and it started after my second docetaxel in the summer and has got progressively worse since then. 
 

ask if you can see a cardiologist as well. 
 

as soon as I see the cardiologist I'll message you back to let you know what was said. I do hope you're ok. Have a nice Christmas 

Natalie 

Hi [@naosei]‍ 

Sorry to hear you're still in the dark about it but it's good you've got an appointment in the new year.

Yeah I came across inappropriate sinus tachycardia when I was doing a bit of researching myself and think that's a possibility that I have this too. It's a very good point about the nerve thing too - whilst I don't have bad neuropathy in my hands and feet I do think it's been affected somewhat by my chemo, I also get these ridiculously hot flushes of my face for several days after the chemo that burn my cheeks. But I don't have a temperature with them, so am wondering if that's nerve based too. 

Definitely something to think about. I see my consultant for my next chemo next Monday and I'm going to go and ask all about it and raise my concerns. They did the ECG on me in the hospital which showed tachycardia but of course in hospital you're mostly laying down so I'm not sure they really realize how bad it is for me day to day in my home environment where I have to get up and do things. 

Thanks so so much for the response, it's really helped me and in definitely going to suggest I see a cardiologist and raise my concerns.

Hope you have a lovely Christmas all the best

Rose

Hi [@naosei]‍ 

Sorry to hear you're still in the dark about it but it's good you've got an appointment in the new year.

Yeah I came across inappropriate sinus tachycardia when I was doing a bit of researching myself and think that's a possibility that I have this too. It's a very good point about the nerve thing too - whilst I don't have bad neuropathy in my hands and feet I do think it's been affected somewhat by my chemo, I also get these ridiculously hot flushes of my face for several days after the chemo that burn my cheeks. But I don't have a temperature with them, so am wondering if that's nerve based too. 

Definitely something to think about. I see my consultant for my next chemo next Monday and I'm going to go and ask all about it and raise my concerns. They did the ECG on me in the hospital which showed tachycardia but of course in hospital you're mostly laying down so I'm not sure they really realize how bad it is for me day to day in my home environment where I have to get up and do things. 

Thanks so so much for the response, it's really helped me and in definitely going to suggest I see a cardiologist and raise my concerns.

Hope you have a lovely Christmas all the best

Rose