Hi Ross2991 

It's so strange to read your post as I am in hospital as I message now with exactly the same thing. I've had all the tests and they have come back that I don't have any heart damage or disease to my heart or lungs. I had a resting heart rate before of 71 and it was around 110. More concerning was when I was walking around the house or up the stairs the heart rate would shoot up to 165-194. Because of this I was admitted. They have put me on beta blockers now and that's brought it down to 86 bpm resting. They have tested me for a rare form of pneumonia that the doctors refer to as PCP. It's a type of fungus that grows slowly in your lungs and doesn't display normal side effects of pneumonia for many months. But one of the side effects of this illness is tachycardia. i would ask your medical team if they have tested for that.
I would be keen to hear back from you though in any event as the doctors here are completely baffled and haven't heard of this before. But now I've found you so there is obviously something going on. I have breast cancer and I've been on FEC-T and Paclitaxel I've had 11 rounds of chemo but they cancelled my last one because of this tachycardia. 

Hi [@naosei]‍ 

So sorry to hear you've also been struggling with this.

Yes they did a echocardiogram, CT scans, ultrasound and bloods. I also had a 24 hour tape ECG completed whilst I was in the hospital.

Reassuringly they didnt find anything necessarily wrong with me which is a positive. But they think it is a combination of the chemotherapy and the fact I had a hemoglobin level of 70 when it should be 120. They gave me a blood transfusion on Friday before I was discharged and I did feel a lot better for having it.

They also moved my PICC line out two cm as they thought that might be tickling my heart but it seems to have made no difference unfortunately!

They also have given me beta blockers for if I get to a heartrate of 140 or more for over 10 minutes which has happened three times. 

I think the worst thing about it for me is the waking up in the middle of the night with it. I got myself one of those oximeter your put on your finger that gives pulse and oxygen saturation. I put that on when I wake up with it and it can be 170! It's horrible!

I can't say they tested me for that particular infection but I will ask about it next time I see my consultant.

They seem to think I might benefit from blood transfusions when I get particularly symptomatic, but don't want me to have them too frequently due to the risks involved and my age.

I really hope your symptoms manage to ease and you find some relief.

Please feel free to keep in touch on your journey and of anything comes of your investigations.

Rose

Hi [@naosei]‍ 

So sorry to hear you've also been struggling with this.

Yes they did a echocardiogram, CT scans, ultrasound and bloods. I also had a 24 hour tape ECG completed whilst I was in the hospital.

Reassuringly they didnt find anything necessarily wrong with me which is a positive. But they think it is a combination of the chemotherapy and the fact I had a hemoglobin level of 70 when it should be 120. They gave me a blood transfusion on Friday before I was discharged and I did feel a lot better for having it.

They also moved my PICC line out two cm as they thought that might be tickling my heart but it seems to have made no difference unfortunately!

They also have given me beta blockers for if I get to a heartrate of 140 or more for over 10 minutes which has happened three times. 

I think the worst thing about it for me is the waking up in the middle of the night with it. I got myself one of those oximeter your put on your finger that gives pulse and oxygen saturation. I put that on when I wake up with it and it can be 170! It's horrible!

I can't say they tested me for that particular infection but I will ask about it next time I see my consultant.

They seem to think I might benefit from blood transfusions when I get particularly symptomatic, but don't want me to have them too frequently due to the risks involved and my age.

I really hope your symptoms manage to ease and you find some relief.

Please feel free to keep in touch on your journey and of anything comes of your investigations.

Rose