Finally diagnosed after 9 months...what now

Hello

I’ve just learned that I have metastatic breast cancer (single spinal lesion). I’m 35, male with 3 young boys.. It’s took 9 months of me nagging and being fobbed off that they thought it was benign to finally get a biopsy done and a diagnosis.

In my head I’ve been 95% sure it was, but to finally be told I don’t know what to feel. Relief? As I’ve finally been taken serious, worry, fear, hope, or in abit of a daze tbh.

How do I carry on as normal, going to work, playing with my kids now knowing my life is going to change a lot?

Ive only been told an outline of what happens next (radiation & seperation surgery + what ever else the oncologist thinks) it just doesn’t quite feel real.

i think I’ll get over these thoughts pretty quickly as I’ve been prepared for this for so long, but as I’m sure everyone on here thinks at some point ‘why me’

thats my little rant over, I just felt like I needed to get out a little what I’m thinking.

Dan

  • Hi Dan, 

    I want to say that I'm glad after all this time that you've finally got your diganosis however I am sorry to hear the news that you've been given. 

    We've a number of members here on the forum who have metastatic breast cancer. I'd suggest having a look at this thread and popping up a reply where you'll be able to connect with [@Shellbell10]‍ , [@cocksedge]‍ and [@TwinTwo]‍ . I'm sure that they'll make you feel very welcome and offer their words of support and advice. 

    I also wanted to let you know that we have a team of nurses here at Cancer Research UK that you can call if you ever have any questions or need to chat. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Keep in touch with us Dan; I know that the community here will do their best to support you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Hi there Danbo,

    Sorry I've been absent from here a fair bit of late due to being back at work after best part of a year, having surgery, and setting up a cancer project in Jersey.

    Really sorry to hear your diagnosis and what you're going through. Thanks to [@Moderator Jenn]‍ for tagging me.

    Hopefully you've already discovered that this is a great place for support.

    I'm also metastatic. I was diagnosed at stage 3c initially (aged 41, but had probably already had it for best part of a decade) but within 8 months I was stage 4. My colleague has it in his family and a number of the males in his family have had breast cancer but I don't know him that well yet so haven't heard much about what they've been through.

    I really hope you feel completely at home talking to us women, there are more of us after all. But equally i understand you may be keen to talk to men with it. I love talking to people with lots of different cancers but definitely had a need to talk to some other younger women with BC because it does affect you differently at different ages.

    Totally get the relief in being taken seriously but also the fear as to what now?

    It's a funny thing, your life changes and doesn't change. It changes in the most major of ways and yet once everything settles down and your treatment is underway you find yourself having to adjust back to 'normal' life (just a slightly different normal life to before).

    Ultimately what's important is your relationships, especially your kids, and you still have that and it's importance doesn't diminish, and their need of you doesn't diminish.

    Anyway, I'll leave you for now as I'm rambling (have a cold so not totally with it!) but just to say welcome to the forum and if I can do anything to help please shout.

    LJx