Advise please

Hi I would like some advise. I have secondary bc in the bones, liver and omental layer. The last 2 weeks I keep getting a frog in my throat. I just wondered if anyone new if it has anything to do with my cancer. Any advise will be greatly appreciated.x

  • Hi shelly so sorry about before it was getting to me a bit I've done some cleaning it's settled me down again, kitchen looks cleaner, anyway, have they said when you're coming home, we've still got to sort a church or cathedral,, do you like High heels,, I'm still sorting our limo out its got a bath inside I'll scrub your back if you scrub mine,. Love Billy xxx XXX 

  • Hi darling hope you sleep well if you can't I'm always here for a talk if you want to pass the time or do you watch TV plenty of films on, love you.... Billy xxx XXX XXX 

  • Hi Shelly how are you now my darling. Can’t brl you had such a adverse reaction as you did. I can only think of one other drug of the top of my Head. That’s a sister drug that your on. It’s Docitaxel. I am not sure they would even consider it although it does work. You will have to be watched closely. Or have a reduced dose. I had it. I can tell you it’s one nasty nasty drug without doubt  we’ll it was for me anyhow. Yet you could saill through it. We all react differently to each drug. It like the one you had that you had such the adverse reaction, I perhaps could tolatr that better than I did docitaxel. I will not lie on my second docitaca I pulled out, it almost killed me. I was told I was luck because at one point they where bringing in the end of life team in. Now please please just. Because that happened to me doesn’t mean it would happen to you. Others have had it and been fine. Have they discussed immunotherapy at all. Because if you can have that you do not get anywhere near the affects as you do with normal chemo. I have been on it. Compared to the 3 different lots of Chemo I have been on. Oh my The immunotherapy was a dream. However after 7 months I pulled out. Only because the fist one I had I felt tired for a couple of days. No pain from it no being sick. Honestly it was a walk in the park. After the couple of days of being tired i was absolutely fine. What actually happened was on me second one I obviously felt tired again only this time about 4/5 days. So each one I was having I just kept  sleeping lover and longer that I was due to have one I saw consultant. My thyroid was flashing up red. Yet my thyroid levels wher just within range only just buy there. I told them I was too tired to have anymore I had a 2 week break in the meantime they contacted a endreconologist, he suggested it sounded like after the treatment it was completely knocking my thyroid levels down over the 3 weeks between it was slower built back up. He did suggest they put me on something therocine for thyroid function until he coul see me. Yet everything pointed to that being the case. I needed a thyroid medication to keep the levels up. That’s why I was sleeping so much and suffering with so much fatigue. I went back after my 2 week break they explained. I had also spoken to endravonolgist. He phoned me to tell me his thoughts he said he would get me into see him as soon as possible. However when I went back they checked my bloods and said I was good to go to treatment the following day. Again I told them I genuinely couldn’t make it. I was still so sleepy even after s two weeks break. I said I am not having anymore because I again knew I would no be able to go because I was too tired. No one could actually wake me up. So that was why I stopped no other reason. I had also had a exelent response so my oncologist said ok will will leave it for now. Once it starts to go I will go back to it only this time with thyroid drugs with it at the same time. I can not see why they cannot offer it to you. One called pembro for short, it’s trade name is something like Keytide that’s having such a big affect of getting rid of stage 4 cancers so much so in America and over here. Some people who have been on it have become cancer free. I am talking about people who had multiple organ brain, and bone cancer. Since that ones been brought out so have many many more the one I was on has a example was a new one trade name Tentriqou. Please please Shelly ask them why.you have not been offered it. You can not go on with what you was on that’s for sure. I am no expert on immunotherapy. Yet met a few people on it for bone cancer and it started to work for them. It’s with a shot darling, now you do know your sugar daddy will tell you. See told you about Marj writing books on here. Lol please get better we need you and miss you, so much lots & lots of love my friend cxxxxxx

  • Shelly My darling of course I would love to be your best women. Ps didn’t mean to let your secret slip. Just come back to us my angel. I will make you the best cake ever we miss you and we need you back, babe. 

  • Hi Shelly I hope you are starting to feel a lot better now. I am going to be honest hun, but if you can. Just put anything. Anything at all. Even if it a few dots of something. You can gone quiet and starting to get really worried about you know. I know it’s not easy coming in here when your not well. If you can do it yourself. Could someone just pop in and tell us how you are darling anything please babe. We are missing you so much. We also need to know if your ok. Well I say ok. You know what I mean as ok as possible.  Has I said if you aren’t well enough yet to do it yourself. A family member you’re husband perhaps. Getting really scared for you know angel. I said to Billy yesterday it in cases like yours where your not able to get on here. Perhaps we ought to think of  exchanging mobile numbers. That way we could text if even a quick ring. We both hate being up on the air not knowing how you are or anything. I will pm my mobile. Just a quick texts no explanation needed just a hi!!! Will do. I am sure you will tell us when well enough ok sweetheart. Look in your messages fo my number ok Shelly lots lo love. You know how much we both love you Marj xxxxxx

  • Hi anyone sorry if a bad time I'm trying to find out how shelly is three or four of us have been trying to find out whats going on for weeks we're worried about her,, if you could reply here as I say sorry if bad time,.. Billy 

  • Hi Billy, it looks like they taken the phone number out. I would also make enquires  regarding Shelly. Please accept my sincere apologies for having troubled any of Shelly family of friends. It true we really do not know where else to turn. Although I fully understand if your not prepared or it’s inconvenient at this time. We really do not want to upset anyone. Yet for weeks I have plus others been wanting to head from her. We would be extremely grateful if anyone could give us a  possible update in how she’s feeling. Again my sincere apologies. I have sent a private message We all send Shelly lots of love. We 

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