Hello Lumponneck, 

I thought I'd pop in and say hello and put you in touch with others on the forum who have also experienced neutropenia. For example [@Rufus29]‍ mentioned having a very low white blood cell count on this post .  [@Charl-s]‍ 's mum also had issues with neutropenia as you can read here and I hope you will hear from others on the forum who have been in a similar situation and that they will advise you on how they themselves dealt with it. 

I think it is worth also asking your questions to your medical team. They will be in the best position to advise you on this. Our nurses may also have some helpful suggestions for you or might be able to point you in the right direction. You can call them on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

I hope you manage to get these numbers back up a little and that your treatment will not be affected. 

Very best wishes, 

Lucie, Cancer Chat Moderator

Hello :) 

unfortunately my mums neutropenia actually was underlying leukaemia. This is a very very rare and extreme case as she now has two seperate primary cancers.

On the positive side she’s on her 2nd cycle of chemo for AML and is getting better!  

I hope your neutropenia resolved and your treatment has started.   Wish you all the best 

Charlotte xxxxxp

Sorry to hear that. Thank you for sharing though. My counts have finally gone up which is a relief so doctors are not worried. I had managed to pick up a cold and cough which I struggled to get rid of so maybe down that that? Not sure. Thanks again 

Hey, I was hospitalised last week with Neutropenic sepsis blood was at 1.1 but after 4 days of iv heavy antibiotics was released and managed second round of chemo.

Don't know if this helps xx

Anne sending big squishy Scottish hugs x

Sorry to hear that. It’s reassuring (for me) to know they still went ahead with chemo, my biggest worry would be they would delay. Fortunately I haven’t had neutropenic sepsis but you can hopefully see why I feared getting it with a neutrophil count of 160 when people like yourself got it with a count of 1100. Really appreciate you sharing. All the best, Anna xx 

Fortunately I haven’t been hospitalised but I am lucky enough to have my own bathroom at home. Nice hearing that the hospital made you a priority though. And wow that’s really interesting to read (that you have a permanently low count). I didn’t realise you’d be able to carry on as normal! Luckily my count is going back up so it shouldn’t be a problem but that’s good to hear. Thank you. 

Hi All.

I have had low bloods for 18months.i knew something was wrong as ifelt so unwell. But doctors in thier wisdom said it was penicious aneamia so i started injections. Bloods still down .so they said it was my Rhuematoid or the meds i take for it. Eventualy when my HG got to 9.0 they sent me to a Heamatolergist . Had abone marrow Biopsy which showed i have MDS at the moment i.m just on EPO Injections for my red cells .they have picked up slightly still feel tired .before christmas i had a virus and everything dripped again my Nuetraphil count was .9 now its back to a normal1.2.

I have never heard of MDS before this so find it scarie .have asked for a second opinion as my doc doesn.t explain anything and keeps saying i think. Not which type of MDS. Or what happens next. I know they do say wait and see alot .but bloods still remain down .which worries me.

Any advice .i will be so grateful for.

Hi, sorry to hear your bad news. I was very lucky to have had a quick and easy diagnosis but I know that isn't always the case. I haven't got any knowledge of bone cancer so wouldn't be able to offer advice but maybe someone else on here might? You could maybe to making a post asking so that more people see it. I hope you get the information you're looking for. 

Thank you for your reply..haven.t made a post.will try .Hope you are feeling a bit better .its good people who are frightened can get on here and ask questions and get an honest reply .x