Help with incurable diagnosis and fatigue

So iv had a benign brain tumour since a toddler. Left me partially sighted and other issues but led a normal life. Qualified as a nurse 5 years ago. Fought hard to live and be treated normally. Then December 22nd 2017. Had a phone call to say a recent routine brain mri scans showed growth and bleeding around the area. So after my 3rd brain surgery I heard it had come back as a malignant transformation. So basically cancer cells were found in the benign tumour. Very rare. So had a craniotomy, then went straight into full radiation to my head and chemotherapy. Then started taking thc  oil. They said it’s incurable but responding at the moment. I finished treatment last July. So it’s been 9 months. But I’m still so fatigued and struggling with the fact it could start growing again at any time. I’v never been anxious or depressed but I’m isolating myself. No one understands what I’m going through. Even my go said I’m too complex and no one wants to touch me. Iv been left following treatment with all the symptoms. As I’m too specialist for a specialist nurse. I just want to cry. Im tired of fighting but feel if I stop I’m going to die. My boyfriend is in total denial. All my family are boys, and they can’t talk to me about it. I don’t want to die but I’m so tired I’m running out of fight. Can anyone give me advice on dealing with this mammoth pile of crap my life has been dealt. Iv been positive the whole way through but iv got nothing left. I’m 36. This cancer has taken a lot from me. The chance of my own family. My sanity. My positivity. My individuality. I feel like my life is being run by cancer. I want my life back. Thank you

  • You poor lady, I want to reach across the internet and give you a huge hug and a shoulder to lean on so you can let it all out.  Please ring a helpline and have a chat to someone about how you are feeling.  Any help line will do you need to let some of this go.  Once you have the positivity will come back and you need to make some plans to do the things you want to do and can do.  What time you have is for living not regrets.

     

    Lots of love

    Mo xxx

  • thank you so much for your kind words of support. It really does mean a lot. Thank you . X