Hi most of us have been in the same boat, if your not being sick you are a lot better off then some of us, most of us wish it was over, but we know once we get through the bad times, then comes the good things live normal, taste what you are eating. (some strong foods do taste OK) I'm afraid it's try and see. Good luck with treatment, things do get back to normal, again good luck.

Billy 

Thank you for your reply Billy,  I knew chemo was hard but I feel like it's taken every joy from my life.  I've just managed to get up and get showered so I guess that's a start.  

Thank God for this forum and being able to hear about other peoples experiences.

Hi shorty if you can get out of bed it's an improvement to what I was some days, the main thing is it does get better after treatment sometimes it's slow but you do get there in the end, I'm surprised others haven't joined in already anyway best wishes. 

Billy 

Hope you're doing well Billy,  you're always there with encouragement, thank you

Hello there!

thanks billygoat for tagging me, I've been on quite a rollercoaster myself since last Friday....so much going on that my feet haven't left the ground...

but first to you shorcake, oh love, I totally and utterly understand you my love...after each chemotherapy cycle I would just sit there staring into space thinking...I can't take anymore, I wanted to stop at each one, I mean...how much can your body take?? It was ( and still ) is the fatigue that gets me.....the sheer energy it takes to do simple tasks is mind blowing, no one truly understands unless they've been through it....I was told last Friday by my oncologist that they're stopping my chemo as my side effects are in danger of being permanent (!) I've done 4 cycles of fec....and now I have another shed load of treatment and meds coming up....

its all so exhausting......you have 8 cycles? You have my empathy darling....have any of your doses been tweaked to make it more bearable? I don't have any coping mechanisms for mine....some days I just have to go back to bed.....I wish I had wise words of wisdom for you.....

you moan anytime you like....my hubby calls it my chemo moan...cheeky begger! 

Have a chat to your chemo nurse, see if there's any mild antidepressant you can take while on chemo....just to get you through it......

much love.....xxxx

Hi Marlyn,

Sorry to hear that the chemo has given you such a rough time It really is the nastiest thing I've been through.  It is astounding how hard simple tasks have become and in my case sometimes family don't even attempt to understand how hard it is.  

No one understands....unless they've been through it no one has a clue. Even my best mate is saying " now chemo is done we can celebrate and you can get on with life" but it's not like that is it? After chemo more stuff is thrown at us...more side effects to cope with and the fatigue just builds up! It seems never ending....

im sorry your family are not grasping how vile all this is for you, that doesn't help at all, I mean we don't want constant sympathy ( that would be irritating) but we do need allowances.....all I can say is your completely allowed to feel rubbish, don't beat yourself up if something as simple as brushing your teeth wears you out, or a short walk to the bathroom leaves you puffing and panting.....be kind to yourself...

i belong to a breast cancer chemotherapy forum and it has literally been my life line! Chatting to other ladies who are in the exact same boat as me really helps, just knowing you're not on your own.....

im always dipping in and out on here and will be here for you if you need a good moan.....xxx

ps.....I'm totally addicted to salt and vinegar and cheese and onion crisps....have you tried them while on chemo? Xx

It is so reassuring to know that I'm not the only one feeling this way. 

I'd always heard that chemo was hard and that scared me but I honestly thought that it wouldn't hit me that hard.  I think I need to accept that I will feel rubbish for a good while and just take it a momemt at a time. 

Chemo will be over in July, God willing.  Hopefully the radiotherapy and hormone treatment won't be as bad. 

I will definately give the crisps a try :) 

Hi Marlyn,

I am so sorry to hear that they have decided to give up on your chemo. You have battled on so valiantly despite all the terrible side-effects you've had to deal with. Have they discussed where to go with treatment for you now that chemo is no longer an option?

I sincerely hope that they find something effective for you, but without the side-effects.

Kind regards,

Jolamine xx