Tamoxifen conundrum

first post for me after surgery for idc grade 3 in June 17. Lumpectomy 6x Chemo and radiation.  I am now taking Tamoxifen but struggle with it every day.  I just don’t feel like me, fatigue muscle and joint aches, low stamina and weight gain to name but a few.  I am now considering stopping Tamoxifen and wonder if anyone else has gone down this path.

My bc nurse has told me that Tamoxifen gives me an extra 8% protection from the cancer coming back, is it worth it for loss of quality of life?

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  • Hi there ...

    I didn't know anything about tamoxifen when l started after my grade 3 breast cancer masectomy ... now I think I'm a pretty tough cooking ... nothing fazed my up till then .. over the first few weeks l started crying over everything ... ruined my son's birthday party .. ran off in floods of tears over nothing really .. cried for 2 days solid ... 

    Then I asked on here and found lots of others had side effects ... emotional and physical... I'm not sure if it effected bones as I've got stenosis and scoliosis and arthritis... so can't say about that as I'm in pain with that all the time ... but I'm glad I carried on ... I took a mild anti depressant for a couple of weeks which evened out the mood swings .. I'm 18 months down the line now and fine ...

    Just wish we were warned to expect it ... but weigh it all up ... I'd say give it another month .. if you still feel like that then ask about stopping .. everyone is different .. but good luck... hope it settles down for you ...  Chrissie  ; ))

  • Thanks Christie, it really is a B#*#*#*# drug.  I also have arthritis in most places.  I do go regularly to the he gym and find that helps.  Have just had a weeekend fromhell really and that’s what made me post today. I really suffer with fatigue and have had to take a day off work today as I felt so worn out.  

    Spoke to the bc nurse ttoday and she suggested taking a tablet at night instead of in the morning to see if hot flashes lessen so at least I’ll get a good nights sleep.

    I get so fed up of hearing myself say I feel tired or aches. I actually get on my own nerves.

    ive been on it for a year now and would like to carry on, just got to find the way I suppose.  

    Carry on carrying on :)))

     

     

  • Hi ...

    Just want to add, that energy level effects lots of us ... I have to have 2 days complete rest a week ...  it can last year's ... I'm sure the cancer zaps us and it's just finding a new normal ... I used to feel guilty but soon realised without it, I couldn't function. .

    So don't be hard on your self ... listen to your body ... it knows when you need to stop ... so many find working again is draining ... when they thought things would go "back to normal"  so take it easy ... give yourself time ....  Chrissie x

Reply
  • Hi ...

    Just want to add, that energy level effects lots of us ... I have to have 2 days complete rest a week ...  it can last year's ... I'm sure the cancer zaps us and it's just finding a new normal ... I used to feel guilty but soon realised without it, I couldn't function. .

    So don't be hard on your self ... listen to your body ... it knows when you need to stop ... so many find working again is draining ... when they thought things would go "back to normal"  so take it easy ... give yourself time ....  Chrissie x

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