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Tamoxifen conundrum

Usedtothefiht
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first post for me after surgery for idc grade 3 in June 17. Lumpectomy 6x Chemo and radiation.  I am now taking Tamoxifen but struggle with it every day.  I just don’t feel like me, fatigue muscle and joint aches, low stamina and weight gain to name but a few.  I am now considering stopping Tamoxifen and wonder if anyone else has gone down this path.

My bc nurse has told me that Tamoxifen gives me an extra 8% protection from the cancer coming back, is it worth it for loss of quality of life?

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    Hi

    Im on tamoxifen, i found I had different symptoms with different brands and have now stuck to the same brand. I too get aches and pains plus hot flushes and night sweats. I decided to take evening primrose oil (pharmacists advice) and it has lessoned the side effects. I’m moving off tamoxifen in a couple of months time and onto another drug but would have no hesitation in seeing my go about other drugs that would help with side effects, some have said a mild anti-depressant works but my pharmacists also mentioned another drug but I can’t remember the name of it. My advice is to try and mitigate the side effects and stay on tamoxifen as the stats show how good it is in combating recurrence. 

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  • Offline

    Hi

    Im on tamoxifen, i found I had different symptoms with different brands and have now stuck to the same brand. I too get aches and pains plus hot flushes and night sweats. I decided to take evening primrose oil (pharmacists advice) and it has lessoned the side effects. I’m moving off tamoxifen in a couple of months time and onto another drug but would have no hesitation in seeing my go about other drugs that would help with side effects, some have said a mild anti-depressant works but my pharmacists also mentioned another drug but I can’t remember the name of it. My advice is to try and mitigate the side effects and stay on tamoxifen as the stats show how good it is in combating recurrence. 

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