Cancer Research UK main site

Finding R-chop so hard

StrugglingJ
Offline

I am struggling. Only been out 3 or 4 times since 1st November as I feel terrible.  I was diagnosed with Marginal Lymphoma, low grade, in both eyes but a stage 4 Diffuse Large B Cell lymphoma in my lymph node.   I got neutropenia after my 2nd cycle of chemo.  I keep thinking I will better tomorrow.  Half way through chemo and may need radiotherapy after.  I keep hoping but finding hard to stay positive.

  • Welcome to Cancer Chat J.

    I'm sorry that you're struggling at the moment but I'm glad you've joined us here on the forum as you'll find many members here who will understand what you're going through.

    [@EmilyS]‍ has had R-Chop for follicular lymphoma so may be able to impart some advice and [@Suzyplums]‍ has the same diagnosis as you. So does [@Bhappy]‍'s mum so fingers crossed they'll pop by when they can to share their experiences with you as well.

    Keep chatting to us here on the forum and remember that we're always here for you.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Offline

    Hi

    I had large-b of the mediastinum.  In remission for 11 months .

    I had my R-CHOP as an inpatient as I have some disabilities and other medical concerns.  Two weeks after each session I was rushed back into hospital with sepsis.  So I know how bad you can sometimes feel.

    I got through thinking R-CHOP is the best chemo for lymphoma according to the prof, so I just kept going.

    The only time I left my home was to go to appointment's.  I was too scared to leave incase I caught something.

    I am really sorry to hear your eyes are affected.  I'm blind from birth so really don't know how this effects you but I do feel for anyone who loses some sight, whether it's temporary or permanent.

    Good luck and keep talking to us, are circumstances are different but I know what your going through.

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.