Hi I’m new here partner has just been diagnosed with a throat tumour . He has had a sore throat and difficulty swallowing food but can still drink . His voice has changed and he is bringing up green phlegm . His breath is also really bad . We go on Monday for biopsies etc . Can anyone tell me what their symptoms were and what to expect thanks . 

Hi I’m Hazel 7 years post chemo radiotherapy for hpv tonsil cancer. My only symptom was a lump in the hollow of my collar bone. My blog might help 

www.radioactiveraz.wordoress.com

my biopsy was under a general anaesthetic I was in at 12 and on way home at 6 pm. I could eat normally afterwards 

let us know how you get on head and neck cancers do respond well tj treatment. 
bear wishes 

Hazel s

Thank you for the reply . Yeah all depends on results tomorrow . He has no lump on his neck just problems swallowing and can only consume liquids just now . . His voice is also very hoarse and he has really bad breath something he never had before . Also spitting up green phlegm all the time . Obviously I am so worried he is so strong . Weill know tomorrow or soon what we are dealing with I hope . 

Take a notebook and pen don’t leave until you’re satisfied that the consultant has explained everything. Cancer can be ruled out as well as in. Not all urgent referrals are cancer. But please let us know how you  get on. I had no swallow issues or breath neither was my voice hoarse. We are all different. 
 Hugs 

 Hazel x

Thank you yes a lot of questions to be asked tomorrow foe sure . 

Hi its been a while since I looked in I hope everyone is still doing well, there was one question that the oncologist and consultants didnt give me a proper answer to and that was how the HPV virus can lie dormant in us, Iv just read completely by chance that the virus can lie dormant in us for decades before mutating, just thought it might be worth mentioning as some might find it useful.

Dave

Hi Dave glad you are OK. My oncologist told me little HPV info   but had a good read about it , yes most carriers don't know it , no symptoms  just unlucky ones like us get the odd rogue cell. It's the research into variants like 16+ that lead the medics into finding how treatable it is..

Having said that I still find myself moaning about what I can't enjoy now due to side effects . And now huge thyroid issue with dreadful symptoms, they mentioned as a long term side effect of radiotherapy  to neck from year 3 on. It was nothing all the way to year 7 for me but hit like a freight train this year. Again find myself moaning . But we KNOW  non hpv isn't always as treatable so I remember that and it shuts me up

Hi Dave glad you are OK. My oncologist told me little HPV info   but had a good read about it , yes most carriers don't know it , no symptoms  just unlucky ones like us get the odd rogue cell. It's the research into variants like 16+ that lead the medics into finding how treatable it is..

Having said that I still find myself moaning about what I can't enjoy now due to side effects . And now huge thyroid issue with dreadful symptoms, they mentioned as a long term side effect of radiotherapy  to neck from year 3 on. It was nothing all the way to year 7 for me but hit like a freight train this year. Again find myself moaning . But we KNOW  non hpv isn't always as treatable so I remember that and it shuts me up

Hi Graham, sorry to hear that you’ve got thyroid issues touch all that I’m okay. My numbers are rising but I’m not getting any major issues with it. I still have a yearly blood test. I hope everyone else is still having that reminder GP you need both your T4 and your TSH level check-in. How’s the everything  in Tenerife for the moment? Are you still busy live music in the resort here a lot of the English bars haven’t had the correct licenses and this year they’ve really been stamped down 

h xx

Hi Hazel glad you are well. My tsh hit 9, sub clinical  no symptoms year 5. Year 7 was getting headaches , put it down to other things . But early this year as  the weather heated up I found I was overheating.  Next I noticed after workouts  extreme heat underarm. Then , no persperation there.  Soon it all got much worse tsh was 19 ! Pills ttok it back to 9 still not feeling right , stronger dose few weeks ago retest soon. Pills helping now. Basically  the thyroid damage stopped me sending a signal to my sweat glands , they " switched off" . Been doing a lot less gigs because of it, loss less anything actually.  But been back past 3 weeks.  This year feels quieter ,  after record years post lockdown.  It had to slow down , madness every month here . We get noise clampdown often too. Usually near election time .........

Hi all and glad to see in the main all well....maybe i should but never check anything and havnt for years.....sorry to hear of thyroid issues and hope managed properly...Dont know if related by sometimes have cramp like issues in neck and read that this could be symptomatic of radiotherapy that manifests some years later.....anyhoo, I hope all well and good to see and hear we are still all hear after our journey together all these years ago..

Kind regards,
Ian

Glad you are thriving Ian, yes the neck stiffness and cramp come long term too. I find after a 2 hr gig head stuck at mucstand height I'm sore next day , and sitting talking even I  the house I turn my chair to face people as sideways facing convos make it worse 

Sorry to hear you are having side effects G I feel lucky that Iv come through relatively unscathed from having RT in probably the worst area we can it, Im fully back to normal and was after probably a year, finding it early was the key I think.

All the best Dave  

Hi Ian  good to hear from you as well. I’ll be in touch. yes great we can just pick up where we left off

ill email you later  

H c

H 

Hi Graham just checked my thyroid figures  TSH in 2028 after treatment 1.69 last November gradually increased to 4.86 nothing as drastic as yours. S friend took a few months to get his medication right. Yes the mayor here up for re election next year so making a stand 

glad you’re doing some gigs 

keep  in touch everyone 

H x

Get your thyroid bloods checked annually 

h x