Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • No problem we can’t put hospital name or consultant. Yes I’m good now almost 7 years and living a great life. If I can help Lynn just ask 

    Hazel x

  • Thank you Hazel. That's fantastic to hear you're doing so well. It's comforting to hear these things too, as my husband is just starting his journey.

    Something that is concerning us if the delivery of supplements have just come through and I'm astonished at the sugar content, over 15 grams each - I noticed someone said 5 per day to get calories in, but that's 70 grams of sugar alone, without taking in to account other possibly manageable foods. The doctor at consent meeting said that high glucose levels and diabetes can be common side effects of RT - but surely what they're feeding is the culprit, or doesn't help.

    It's really bothering us, as were part of the anti-UPFs movement in food stuff, and now it looks as that choice is going to be taken away by having to take these replacement supplements  - I realise this might sound minimal compared to the overall treatment coming up, but my husband's health is otherwise good, no diabetes, no high cholesterol, etc etc, so shame he could be left with other problems because of this. Not sure if you or anyone is aware of any optional/better  choices of supplements that will be calorific but without the high sugar? We'll obviously talk to someone about it too.

  • Hi sorry to hear of your predicament , some say  that cancer can thrive on sugar the NHS say there is no strong evidence of this ,if it was me I would do my own research there's nothing wrong with that .

  • Hi it’s not for ever and unless you have Bern in a position where you can’t eat there’s not a real alternative. I’m fine my cholesterol is 2.8 it never really rose during treatment. For a shirt tone it’s needs must. The feeding tubes if he needs one gives a balanced diet to enable treatment continue. I was cycling adding from weekb8 albeit fluky and not far. We need the extra amities to recover. I’ve been in these friend for almost 7 years there’s a case for both but I am happy with my choices. I’ve always eaten stealthy no n smoker non drinker but I get throat cancer caused by hpv I spoke at length either my dietician suggest you fo the same. It’s hard to understand if you’ve never been in a position where you csntveven drink water never mind eat healthy. I’ve known people have to be hospitalised and fed intravenously on occasion. I too rarely eat processed foods in a child born in the 50 s it wasn’t around them I’ve always copted   full decent meals from scratch. But during treatment it really was needs must. 
    imagine not being able to swallow lettuce I couldn’t for over 2 years or chicken even now chicken sticks. It’s the texture 
    best wishes

    Hazel 

  • I even bought nutribullet prior to treatment not a chance if anything from that bring swallows for a good while. Hope your hobby’s different but just be aware treatments brutal snd I needed 2500 calories a days including 85 g of protein I personally took the decision to follow medical advise. 

    Hazel x

  • Hi Hazel hope you are ok, I can only add to what you are saying I asked the same questions about the high calorie content of the drinks they gave me when swallowing got difficult I was told it was to counter the weight loss that was inevitable, keeping our weight stable helps the body recover from the radiotherapy. 

  • Hi Dave I’m good thank you still living the good life. Just off to allotment then will watch the boys. Arsenal I think will win but hoping g for a better performance hope we give Rubin time to get a team together. Was in touch with ian  before Christmas he’s in for a few issues but but not cancer. Thank for replying as you said it allows our bodies to recover. Hard ti understand until you go through it I had visions of high protein smoothies. As we know not  a chance. 
    For most of us once the ulcers abs burns start  

    Hazel 

  • Hi yes all good here thanks and got our first grandchild Thomas who`s 5 months old and got thighs like Duncan Edwards so very happy atm, yes Amorim has a right job on there changing them into what he wants and as ever it wont happen overnight, he does seem good though.

  • Hi bless him our grandson James is now 14 he’s almost 6voot and yes he is built like Duncan Edward’s but he’s a rugby player.  Grandkids are great even better when you give them back after you’ve finished spoiling them. Ian got one Finlay he’s 2 and another in the way soon. Finger x for Man U keep in touch we fly 2 March for our next trip. One life just living it hope Julie is well aslso. 

    Hazel 

  • Yes she `s good thanks and always on her ipad looking at holidays...:) we go to Skiathos in May and Thomas will be there too with his mum and dad, we might squeeze one in the Canaries too soon it has to be done, great to here you are making the most of it too thats the way to go girl.