Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Hi Ian, I was advised to read your blog by a moderator; I’m just into week 2 of 7 for treatment of tonsil cancer. I’ve started to experience thickening of the mucus in my mouth and note you bought dehumidifiers to help. I’m just wondering how they work and whether you could share the name or a link to the ones you had (I know it was a while ago for you now but there are so many out there)! Thank you

  • Hi this is Hazel it’s a humidifier  not a de humidifier mine was from Amazon. It was a cool mist  around a£35 I used it every night.  What it does is make the air moist the opppsute if a de humidifier if that makes sense.
    The sticky  mucus unfortunately it is a major side effect of treatment. You can try and clear your mouth out without a flat Diet Coke. If you can tolerate it soda water that does help later  treatment mine was so bad that I was prescribed carbucysteine to thin the mucus down later the mucus goes often replaced with dry mouth  

    well done week 2 in you sound on track. Happy to hell

    if I can 

    Hazel 

  • My nephew is almost 12 months post tonsil and lymph node cancer. Doing well but still has dry mouth. During radiotherapy bought a steamer found useful.

    My husband now 7 months post radiotherapy for back of tongue and lymph node cancer. He also has no saliva. The heavy mucus stage has gone. Eating ok can't tolerate spicy food. Has to always have water available.  Uses Biotene mouthwash prescribed and bought Xylamelt tablets from Amazon as our hospital does not prescribe.

    My husband was pronounced clear at his follow up in April so good luck.

  • Iv just had my 5 years clear appointment, they said come back in a year if you want so agreed to that. Dry mouth is my only complaint really which is worse in the night or when exercising, something i`ll have to live with. 

  • How donyiu cope with it as I totally struggle with it?

  • Thank you so much Hazel, really helpful and I’ve bought a humidifier and it arrived yesterday (have yet to set it up but will do it today). I’ll see about getting some soda water in too; anything is worth a try! Thanks again for your support :-)

  • Its just something Iv accepted all the things that get recommended are short term relief 

  • My husband found pomegranate juice helpful especially for mucus. We had to buy on line but if you've got afro Caribbean grocery shop near you should be able to get there

  • Offline in reply to Amigo

    After my chemo and radiotherapy I have been unable to shave as it rips my skin right off.

    During chemo I lost all my hair.

    I used to be blonde but my hair has started to grow back in brown with a hint of ginger. I really want to dye it to blonde but I am scared incase  I take some kind of reaction like shaving did.

    Does anyone have any advice or have suffered the same when doing something as simple as shaving your legs?