Hi Laura,

Thats a lot to cope with for you and heart goes out to you.
RIG sounds a bit of a nightmare but glad now sorted. Never had one so cant really comment but might have benefited from one with hindsight, but shame you had to go through that trying to get changed.

Good news that the consultant happy with Mick and long may it continue.

Keep as positive as you can I keep talking about the light at the end of the tunnel and the fact it exists.

Hope Mick continues well in recovery and please keep us posted on progress.

Onwards & Upwards
Ian
 

Evening  you lovely lot . I thought I would give an update on Chris as today was day 19/33 so over halfway woo! 

I went with him today as Thursday is doctor, dieticians& speech therapy day. 

No wight loss probably due to all the mash and semolina I am forcing him to eat .

very sore red neck with blisters - given a new cream gel.

lost his voice this morning he was unhappy about that came back a little this evening but hoarse was told to drink more fluids to keep throat moist .

Speech therapist happy  .

Pain in throat becoming worse but he loathes to take  pain killers but has been told he must take them regularly and don’t fight the pain . He was given morphine to have during the night when it’s at its worst as it will work quicker than the regular co codamol .

Doc was happy with him and is as good as can be expected but it could become worse over the next days! 

Must say everyone in the hospital are absolutely wonderful . We are so lucky to have the NHS .  Kind regards Ginny x 

Hi Ginny thank u  for update. Sounding positive. One word please please heed Drs advise re painkillers like my oncologist said the clue is in the name painkillers he more than likely will need them. At its worst I was on 6 ibuprofen 8 x 30 mg co codomol and 4 x10 mil oramorph. I took painkillers for over 4 month like dr sayd webstecter are taking them for a serious illness we won’t become addicted if we are sensible. Whatever u do don’t stop them suddenly you need a phased withdrawal from them but more of that later  . Just get him to take them as you are now coming up to the nitty gritty part of trestment. I didn’t loose any weight during treatment but 2 stone in the weeks that followed. 

Dont want to put s dampner on just forewarned is forearmed.  

Good luck and keep in touch 

mash n semolina calories calories is the way to go

h x

OMG Hazel 2 stone ! Yikes . We know worse is to come . But the doctors do watch you very closely don’t they? 

He will do as he is told with the painkillers he won’t go against the doctors advice that’s for sure . He takes about four a day now but she said he could take a max of 8 for now and the morphine 2.5ml when he wakes in the night ! 

Dis you lose your voice Hazel we didn’t expect that this early . X x

Hi Ginny yep I was one of the lucky ones  some  loose up to 4 stone . No I didn’t loose my voice at all but in preparation I got an app for  phone called speak just in case as John lol said he wouldn’t answer to a bell !! 

  Yes you are well looked after during treatment the. NHS at cancer leval are magnificent. We all comment on whrn treatment finishes it’s like being thrown to the lions u get occasional consult appointments and if like me s Macmillan nurse for s few months that’s when the forums do help even more as there’s always someone whose been through it all. 

If it’s oramoroh you can go up to 10 mil x 4 check with nurses therevys also fetynal patches if the oramorph 

Isn’t strong enough so don’t worry. 

Hi Ginny yep I was one of the lucky ones  some  loose up to 4 stone . No I didn’t loose my voice at all but in preparation I got an app for  phone called speak just in case as John lol said he wouldn’t answer to a bell !! 

  Yes you are well looked after during treatment the. NHS at cancer leval are magnificent. We all comment on whrn treatment finishes it’s like being thrown to the lions u get occasional consult appointments and if like me s Macmillan nurse for s few months that’s when the forums do help even more as there’s always someone whose been through it all. 

If it’s oramoroh you can go up to 10 mil x 4 check with nurses therevys also fetynal patches if the oramorph 

Isn’t strong enough so don’t worry.