Thank you inn the words of Tesco every little helps .if u can help one person it’s  worth while xx

HinLaura

brill news always good to hear .sorry U.K. weather nit good we had 29;degrees on Sunday which is far hotter than normal !

keepmthe updates coming as good news reallynhelps everyine 

h x

Fab Laura and it's great to hear such good news and progress and especially 4 weeks post treatment.

Long may it continue and keep us updated

regards

ian

NHi ian

will accept my new moniker road runner thank you ‍♀️Just git to get yiu into shape ,try smashed avocado on toasted bap topped with poached egg easy to eat lots of calories .toast bap first spread lots of butter  turn avocado at least 500 calories n easy.  That’s an order !

re new car shame you didn’t specify colour or would have sent youone yesterday which was last day for ordering better luck next time. Lol

off to slap some factor 50 on and run up a mile up a mountain !,,

or maybe ride my bike  nope neither off  for coffee n hair cut even I have a chill day .

onward and upward my friend

hazel aka roadrunner x

th

Hi Ian

Popped in to say hello to you too.

Sorry to hear you are still losing weight. Well you know what Im going to say, eat a little and often!! Its that or bushtucker. And I know which one I prefer.

PS Will a merc fit through your letter box :-)

xx

Hi clara

thank you and I know....just a bit of blip just now and I have appt with specialist nurse and dieticia/team next Thurs so hope will help.

I hope I find you well and your coping ok. Please keep in touch and let me know of progress.

kind regards

ian

Hi Ian

Happy birthday for tomorrow,hope you manage some birthday cake and have a food a day as yiu can Lowe are in Javea in our mini break met our friends from Australia they have such energy atb78/79 bought a  carvin UK bought a  caravan n ferry here now in Europe for 11 months then will sell car n caravan.

she has breast cancer 20 years ago twice in 5 years so had 30 radiotherapy says omg can’t imagine our mouths taking it !!!!!!! Said tell me about it .

love to you n Fiona 

woukd put ?? Kisses in but woukd take all day lol 60!

Hi Hazel

many thanks for tomorrow and will try and do a little something. I'll accept one kiss as its the thought that counts lol. Might even get a bus pass at somepoint although i'll never use.Not sure what other benefits I get for being an official pensioner from tomorrow apart from cheap haircuts at barber !

Not forgotten re balcony n some other pics and will sort and send in next day or so. Was going to update you private re my medical team meeting today but now will update and share with all on here. I know how you all love my rambling essay updates  so if you are going to read my update in full I suggest you make yourself a cup of tea first lol

So...................

Not been updating for obvious reasons but thought I would do an update a month later from scan news and will also update my blog.
Am still struggling with fatigue and appetite and sleeping far too much and not eating properly.

Had a meeting with specialist nurse and team today and was really productive and given some good advice on how to try and break this as continuing like I am, then nothing will change and nothing will improve.

Specialist nurse there, speech and language and dietician.
Little bit of tough love from them all and I have been set an action plan and have to go back in 2 weeks.
Basically what they said is common sense and I guess it helped to have medical team outline a plan and i'm kinda back in the system again for monitoring.
I was told I had lost far too much weight in such a short space of time and my body is in starvation mode and therefore no energy as not enough fuel going in. Supplement drinks are not the answer and can be little additions but not main source now. Train myslef to get back to normal eating again
So was given daily sheets to fill in breakfast/mid morning/lunch/mid afternoon/dinner/bedtime
Have to write down exactly what i'm eating and when and even how I cope with and how feeling. Small portions often, which I knew.
Medication reduction plan was put in place by specialist nurse and I have an appointment to see speech therapist for scope and swallowing exercises.
Even if I am sleeping, set an alarm and get fuel in body even some toast scambled egg smal portion, just get regular fuel in body!
Work - was told in no uncertain terms - have to go off work again and not to think of a timeframe for return yet. Have to set appoitment with  Occupational health at work and they will put in an official report and a return to work plan when ready again.
All in all came away feeling better and probably needed the boot up behind from them to kick in some practical action. I do listen to my medical team and am good at following plans and bit more fired up now have some structure in place.
It's amazing what forcing someone to write down and log food/water intake etc as I dont want to leave blank and there is no point in lying to them. So have had lunch/mid afternoon snack and light small portion tea today. More than I would have done so Im sure this will work and I'll stick to. The proof in pudding will also be my weigh in.
At GP week Tues and will have bloods taken, thyroid/iron and few other tests and will get  sick line.

They will also organise for me to see dental consultant in around 2 months or so

Part from that I'm fine and dandy and I think even coming off work for a little while longer and not having any work stress will help so took a lot of positive from today.
Again we all different but also shows you can get cases like myself where recovery and side effects take a little longer and can occasionaly need intervention of the specialists. So anyone out there who takes a little longer - its perfectly normal i'm told

So 60th birthday tomorrow and new focus with positive head.

I know thread has been quite but it would be nice if anyone comes on , to give a quick update on your progress. I'm always interested to hear how everyone is doing.
I wish you all well

Onwards and Upwards and to infinity and beyond !

ian

Hi Ian 

glad you got sound advise wont say I told u so !!! Lol

I keptva daily food log aiming for 1900 calories a day marks nnsorncer fruit tea cakes toasted lashings of lurpsck n cheese n grill 490 calories n theybgo down a treat.

Scrambled led egg butter n cream also good so that’s  tomorrow sorted then tea 

good update as usual 

H x