Hi Laura,

Thank you and sorry Micks side effects ramped up. Although temporary it doesnt make it any easier at the time and wish him well and I hope you are coping and doing ok as well.

Hope Mick has a good week and keep us posted.

Ian

Hi Ian. Good luck for tomorrow,I am sure all will be absolutely fine,let us know when results  are in . I had a 10 day wait hopefully yours will be quicker 

hazel who is  getting ready for road trip ,taking 96 ensures with us in then car just in case. Lol bush tucker trials on the beach ! 

Defo something to look forward to and I will keep them in mind lol but hoping he will be eating a lot more and enjoying it !!  I know as he loves the sun but keep saying he will have to do factor 50.

That would be a shame if you do but fingers crossed just staying in the shade and wearing a hat might be enough but nothing wrong with Wales :).

No defo dont want it to take anymore away.

Just had my 6 week post treatment check up and it went really well, doc looked in my mouth and had a really good feel around my neck for lumps, loads of questions about taste, eating etc but happy with me and said I had coped really well with the radiotherapy. No need to look up my nose with the camera so it must have gone well! Im completley off any meds now too.

Next stop is the 12 week post scan then the results appointment 2 weeks after that which is 18th April and is my 61st Birthday...guess what I want this year? 

Julie says hello Hazel she is fine and will be even better when we can book a holiday :)

Hope everyone is ok

Dave

That's great news and fingers crossed you get what you want for your birthday :). 

tony didnt have the camera at his check up thank god as he hated it said it was awful.

Take care

Michelle

Hi everyone just bsck consultation went well no camera as he could see n feel what he wanted to. Wants check ups every 6 weeks in first year but agreed that this trip would be ok as long as if I felt ill come home which I agreed to. 

So all good pleased with me 

h x 

Great stuff Hazel and even more reassuring.

Now go and enjoy your trip

ps: agree re gas bill. my heating been on constant as more or less in house all time so expecting a steep one as well.Need to keep warm tho.

ian

Hi Ian will do, yep not looking forward to direct debits increase  ouch I turn it up,John turns it down! 

Forgot tomsay although no camera consultant put a gauze on my tongue so he could pull it a bit without his fingers slipping omg I nearly gagged then he wanted me tomsay eeeeeee not a chance u hold your tongue out n try and say it it’s impossible !!!! Pleased no camera though

onward and upward , hope your heatwave helps with heating over weekend

keep in touch let us know ASAP when u get results ,will keep everything crossed 

h 

Hi Hazel

wow with you saying eeeee, that has just trigged in my mind I had an appointment with Speech and Language. I do  - this Monday at 12.00 noon !!
Never had the gauze before and doesnt sound too comfortable so maybe something else I have to look forward to.

I completely forgot all about appoinetment and its only thanks to you that I would not have shown up so thank you.
To be honest, I have long weekend booked for annual leave and no work etc and may well postpone until after I get results.Seems an ever ending list of appointment schedules.

We can also maybe start a gofundmegasbill# and split it between us lol

and yup Onwards and Upwards for us all and will defo let you know results no matter what outcome.

ian 

Thank you everyone for your updates, they're always interesting to read. My partner finished his radiotherapy last Friday. He still eats very little, this used to be due to the vile taste, but now because of the pain. But I'm really impressed that he's only taking 4 paracetamol a day, nothing else. He's having 3-4 ensures a day into his PEG tube. He's still very inactive and isn't talking much, and his spirits have been low for most of the treatment (chemo was awful for him, they stopped this after week 4). Next week our girls go back to school (primary school age). Hopefully the weather is nice. I'll continue collecting them from school but I'll suggest to my partner that he leaves about 20 min after me and to meet us on our way back, I'm not even sure he can walk all the way to school now, he looks so frail (it's a brisk 10 minute walk). He used to do most school runs and my girls are really missing those. They're looking forward to him playing again (Lego, taking them to park etc). I'm looking forward to being able to have a proper conversation. It's like having a stranger in the house and my girls have found it very hard (he was always a very hands-on dad who did loads around the house!).

Keep on posting!! 

Hi Louisabel.

I was where you are when my husband had his treatment. You will find patience you never knew you had. As you will have read the treatment goes on long after completion.

My hubby sat in front of a tv but could not tell you what programme was on. I would say everyone is different but in his case it was about a year before he got back to his old self.

Do you think his pain is properly addressed with 4x paracetamol if pain is affecting his ability to eat?

This is great place to find hints and advice. There is always folks come along if you need a bit of a chat or whatever.

Kind regards xx

Hi Louisabel,
On one hand its good that radiotherapy is now over but I'm afraid in most cases this is where the side effects are most challenging while on recovery phase.
I totally agree with Clara for rasing the fact only on 4 paracetamol. It's not a case of being impressed but making sure that appropriate painkillers are taken to control the pain. As he cant eat because of the pain I would suggest he is not getting the painkillers required into his system.
Painkillers are there for a reason and no one should be in pain, with or without eating when there is a solution to control it, but only my opinion.
I would really advise you to speak to his support team/GP and let them know what he is taking and I'm sure they will advise accordingly, especially as you desribe such pain.(It was at this stage I needed morphine the most).

On exercise we are all different and while there are a few who have managed to exercise quite soon after radiotherapy just stopped,some, like myself, did not have the energy to go out walking much.
We are all different and we all need our own personal recovery time no matter how long it takes.My consultant told me it can potentially take a year or so for bodies to fully recover and get back to way they were before treatment,

Hope this helps and blogs from myself and Hazel,cover post treatment / medications etc at various stages and based on our personal experiences.

Link my blog again is below and also contnis a link to Hazel's

radiotherapythroat.home.blog

regards
ian

Hi Louisabel,
On one hand its good that radiotherapy is now over but I'm afraid in most cases this is where the side effects are most challenging while on recovery phase.
I totally agree with Clara for rasing the fact only on 4 paracetamol. It's not a case of being impressed but making sure that appropriate painkillers are taken to control the pain. As he cant eat because of the pain I would suggest he is not getting the painkillers required into his system.
Painkillers are there for a reason and no one should be in pain, with or without eating when there is a solution to control it, but only my opinion.
I would really advise you to speak to his support team/GP and let them know what he is taking and I'm sure they will advise accordingly, especially as you desribe such pain.(It was at this stage I needed morphine the most).

On exercise we are all different and while there are a few who have managed to exercise quite soon after radiotherapy just stopped,some, like myself, did not have the energy to go out walking much.
We are all different and we all need our own personal recovery time no matter how long it takes.My consultant told me it can potentially take a year or so for bodies to fully recover and get back to way they were before treatment,

Hope this helps and blogs from myself and Hazel,cover post treatment / medications etc at various stages and based on our personal experiences.

Link my blog again is below and also contnis a link to Hazel's

radiotherapythroat.home.blog

regards
ian

Thanks for your reply!  I totally agree with you, when I had 2 c-sections I never felt any pain because I took the tablets, I'd rather not feel any pain. My partner is very stubborn and isn't even using the aspirin mouth wash prescribed, nor the Codeine. The reason why I said I was impressed was because the dietician said people usually start using strong painkillers from week 2 or 3, whereas he only started feeling the pain in week 5, that's when he started with paracetamol. He dislikes the taste of many foods, water is vile, bread is disgusting etc, but he has eaten more the last 3 days. In fact he said I was very optimistic when I handed him his chicken stew tonight as I served a heaped serving spoon on some rice, but he ate it all and asked for more. I think he's finding the taste and texture a bigger issue than the pain.