Hi Laura,

Thank you and sorry Micks side effects ramped up. Although temporary it doesnt make it any easier at the time and wish him well and I hope you are coping and doing ok as well.

Hope Mick has a good week and keep us posted.

Ian

Hi Ian. Good luck for tomorrow,I am sure all will be absolutely fine,let us know when results  are in . I had a 10 day wait hopefully yours will be quicker 

hazel who is  getting ready for road trip ,taking 96 ensures with us in then car just in case. Lol bush tucker trials on the beach ! 

HimIan yes it does although paying the price now mouth quite sore ,yhinkmive tried too many things today gums quite sore .But ready for sleep now , tomorrow is another day 

hazel

So week 13 post treatment and still chugging along. My posts can be detailed but again I find personnaly therapeutic and I want to be able to look back and have the milestones as would forget otherwise.

I do feel there has been an improvment this week and although baby steps it's in the right direction this week.
I'm still sleeping a lot but am awake for longer and longer although I have turned night into day a couple of times.
Eating wise, am still on Ensures but not as much and have been trying to experiment a little more. One of the tricks I think is to try smaller portions as I get put off by a big plateful knowing I cant eat it all.
Had stovies/fishcakes/cottage pie as examples and also back on my mini curly wurlys and fruit salad squashy gummys. Have also tried Hazels suggestion of mini jaffa cakes and enjoyed.Hot toasted cinnamon and raisen loaf  and butter/cup of tea now goes down nicely.
It's funny and not sure if others same but I dont seem to have much consistency as I can enjoy say cottage pie one night but few nights later cant touch it. The other thing i am finding is that my mind is actually in the mood of certain foods, I really want to eat them but for some reason I cant. I dont know if its a mental block or otherwise but I dont fully undertand why I cant eat what I know I like and want to eat but can't sometimes physically do..Not sure if making sense but I know what I mean.

Had my PET/CT scan today which ive posted separate detail about and also being doing some work from home and enjoying.Reading a bit more so all in all when I add all these things up I guess that although im still tired and sleep a lot, I do feel some  progress has been made this week and am hoping to build on that. I'm taking this week as positve step in right direction.

I have also been thinking that for anyone reading my blog and I am week 13 post treatment it is perhaps pertinent to say that we are all different and react and recovery will be different for us all. There is no automatic magic number of days or weeks that applies to us all. SuperDave has had a remarkable recovery period and Hazel has done really really well and back on bike quite early on but still has occasitional side effects .I'm probably lagging a bit recovery wise in terms of fatigue and appetite so we all varied.
I went into this treatment just after a bout in hospital after 4 weeks chronic diahorreah and hospitalised for a week and on steroids 3 months (reaction to wrongly prescribed medication).Not entirely fit so I'm sure that may have something to do with my longer recovery period wheres if you are reasonbly fit beforehand there would be a good chance that would stand you in good stead post recovery.
I guess just to point out as I dont want anyone using me as a particular barameter thinking wow 13 weeks and still not as far on as expected.
We are what we are and although I think my mind is overtaking my body, you just have to accept that it is what it is and it will al come back in good time and in your own time and not anyone elses.

So still positive and hoping to get good results from scan  - also aware tha scan is so detailed it can also pick up other things not related to cancer, but pretty much a thorough MOT given.

Meds slighly reduced again this week, left gums still swollen sometimes and Im still drinking then drinking again then drinking some more.

Onwards and Upwards

Ian

Hi Ian 

totally agree on the food side ,there is no rhyme or reason for it . I still amaze my self thatbtoast goes down a treat but bread some days won’t. .re iterating ian s comments some if us are SuperDave made if kryptonite some of us more fragile like glass ,but we will all get here in the end .

i am beginning to think I am reverting back to childhood food what mum used to cook ,stew n dumplings goes down well New foods like pasta and rice noodles nonway they tend to stick. Jelly n custard great  mousse and fancy yoghurts not as easier. Wonder if a study should be done on it a dissertation maybe for some university student.

New treat for this week lotus biscuits found in Tesco a coffee biscuit dipped in milky coffee goes down a treat .

plus manageda few prawn crackers let them melt dipped innsweet  bbq sauce  . Have u ever said u really really want a bag of walkers plain crisps !!!! And a few nuts 

glas you feel like a corner as been turned soeingbus in the air dull days of winter and hospital s receeding in the distance. 

Sure your m o t will be fine. 

Onward and Upward s  glad you have re discovered reading it makes such a difference  will update from Spain after the 3 day journey glutton for punishment i know 

h 

Thanks for encouragement hazel and sure MOT will be fine. Dont have date yet for results and no one really communicates. Will chase on Moday and if nothing else I have a GP appt booked for next Thurs so he might tell me.

I like the way you experiment with different foods to tease out what suits you and what you can digest ok and something I should be doing more.
And crisps and nuts - yes please lol but im afraid to annoy my throat with the crisps and nuts are pretty much a no go area now - I have no back teeth and probably not worth the bother, but I'm partial to crisps but will leave for moment.
As for Spain, nah I think its brilliant you have the enegry to do all you do after what you have been through.Your not just going to spain to lie in sun but your a keen biker and i have always been impressed by that. I'm sure you will find time to relax tho as well as all this travel will take your energy as well.
Enjoy Hazel and will no doubt be in touch soon

Ian

Hi Hazel

Thanks for the reply and positive feedback which is great and no I bet you have no intention of bringing it back :).   I will show him all the comments which will hopefully cheer him up and no he is not on his own in what he has and is going through.

I will read Emma's as well.

Hugs to you both.

Michelle

HI Ian

Thanks and it has been really helpful and reassuring to know that what he is going through is "NORMAL"  if that is the right term to use.

Yes let us know how you get on and keeping everying crossed, partners is now 5th March but is still going down so fingers crossed it might have gone altogether.

Just wanted to say he is also trying all sorts of food had a pasty the other day got it down but had to drink after every mouthful lol but enjoyed it.

thanks again.

Michelle (Gormo)

N

todays tip trydiet Coke the bubbles help the gunk

Hi Michelle I am now known as the pie girl pre cancer never really ate them. But nowthey are a good standby that and cheese  on toast. .any pastry goes down try a warn slice of pork pie strange but the cheaper the meat the easier it goes down any thoughts in a nice lamb chop is a way off (sorry Emma vegetarians forgive me ) 

Yesget him to read the blogs n comments we are a varied bunch. 

Off to get the camera up my nose yippee can’t wait. 

Hazel 

HI Hazel

Sorry for late replies still finding replies :).   thanks for dizzy and tingling a few people have said that which is good to know.

He's the same never fel the cold but layers and layers and the heating on all the time but had been told that so wasnt a shock.

We have booked Spain in June!

Hi  gomformit something to look forward to. We went in October form18 days it wasn’t hard ,hardest paetbwas leaving the security bubble of home. But u will be fine , if hubby nit eating properly get drs to prescribe powder supplements to take. Plu sthe pharmacy’s there sell powdered Ensure enough for a week was €35 .the bread shops do a decent cheese n ham crossaint !!!!!

re the cold dreading gas bill lol

just hopingbthat u can stand the heat in spain as I’ve also heard it  can work the ithee way n I’ve never been good I’d too hot know sun bathing is out and factor 50 is in but hoping we don’t have to give uo our rental apartment and end uo in Wales in a static whi is plan  b ,okmi know we are lucky but don’t want cancer  to take  the options away 

h 

h