H Louisabel

Thus is Hazel also on here as radioactiveraz I have written a blog detailing my experiences on www.radioactiveraz.wordpress.com ut seems to have helped a lot of people.

i am now 24 weeks post radiotherapy and still have some problems 

will pass my oncologist s words in to you this cancer is the worst if all cancers to treat the mouth and neck are used by out bodies 24 hours a day eat drink sleep but in a plus side we have the best chance of recovery. I was given the all clear in the 14 January oknall clear cancer free doesn’t mean I’m free still have hospital visits for nextb5 year s but in his words go swim in the sea ride my bike live my life. That’s what I am doing as I type this in Spain living. 

I couldn’t drink plain tap or mineral water for almostb2 months but I had a feedeingbtube and Jihn put that through  my tube younvpcan domthensame withbthe oeg make a cup of tea put honey in ut he can’t taste it but uts ex calories.

one guy who was being treated same time as me thus isn’t easy tinsay needed uo dangerously ill due to dehydration his kidneys were hours from failing  he onky needs sips through his mouth to keepmswallow fiction inended uo only on soda water but it worked  

please please get liquid into him  I Lost 2 stone and am inkyn5 foot I wasn’t taking 5/6 ensures he will need his strength as treatmentbis tough and he needs to be strong for the recovery phase 

Hazelhope i haventbscared  you keep in touch 

Hi folks, not   much mention of hair loss or voice changes, im having both....anyone? thanks.

H

yep had hair loss around the radiation line at back of neck was coming out in handfuls lasted about 2 weeks , know some of the guys 5 monthndown the line still don’t need to shave under neck as well that’s one problem I don’t have yeah.  

My hair is much thinner than itvwas luckliy Oncologist said don’t cut it San it’s shoulder length n hid the area where it fell out. No problem with voice for me. 

Inwill pm younaboutbEric  as well

hbx

My voice is ok, a small patch on the back of my neck is affected regards hair loss but nothing to worry about, no beard growth under my chin now and its a little patchy on my face but I assume it will return.

Dave

Hi Dave!! Thanks for your reply!! That's interesting using the swimmers nose!! So if you hold your nose you can't taste something disgusting?.... interesting! I'll suggest that tomorrow. 

Thank you for your reply Ian! I was overwhelmed by all the responses! My partner had a low BMI to start with and now weighs 60kg with clothes and shoes on, so you can imagine he's like a skeleton (almost 6ft). Well he had 3 ensures into his PEG today and a bit of water. Hopefully the dietician knocks some sense into him on Monday.  He's looking very frail.

Thanks for your reply Laura. I'll have to buy some sparkling water, although he tends to hate that at the best of times!! Also he's always hated soups and shakes and she to crohns disease is quite fussy. Thanks for the encouragement.

My partner hasn't lost hair on his head but his stubble hasn't grown. Today I actually thought he'd shaved whilst I was out, no he hasn't shaved for a week and his stubble is sparse. One positive from treatment I guess!

Hi Graeme,

No real noticable change to voice apart bit gruff first thing and no real hair loss apart from back of neck hair not growing back in or neckline but nothing noticable..

Note - electric shaver only and no alcohol based gel/cream advised.
ian