Hi Laura deep breathe you can5 afford to be ill mick will need you stay postive .he will take i5 like a man hazel

Hi Laura,

My thoughts are with you ad understand wanting to get on with the treatment.
Once starts and in some routine its a little easier to deal with if that makes sense.

Stay as strong and as positive as you can and know we are are all here rooting for you and here if I can help in anyway at all.

Kind regards

ian

May I take this oppertunity to all in this little club a very happy, healthly and blessed 2019.

Wherever you are on the journey I wish you all the very best.

kind regards

ian

Hazel,

I celebrated new year with nice iced water, curly wurlys and more vital retail therapy !

Hi Ian

ditto re the water and a few malteasers for me in bed before midnight. 

A tip for yiu I bought ages ago online xymelts from the lozenge company plain nit mint as someone said they were strong. Weeks ago I tried one in mouth a night dorndry mouth and couldn’t stand it was early in post radiotherapy,well this week my mouth been drier than the Sahara and upmin bed constant sipping water. So last night thought be a devil and cut one in half omg gave me 4 hours and when I woken mouth was moistbsonputbither half  in amd  got until 0730 . To get them to work you have a little saliva u follow instruction so n stick to gum along cheek. Thought may be if use to you. 

Also did some retail therapy butbmine was ordering 3 new toothbrushes I love my curaprox toothbrush sas I know.

well good luck with continued recovery and I echo your sentiments for 2019.

scan day Thursday am remarkably calm , my view is u can’t worry overbsimething I have no control over will go with the flow 

hazel

thanks Hazel and may give a go, but touch wood, my mouth is not so constantly dry now and little more salivia than have had in ages and taste buds hit and miss tho, but stil experimenting.

I love the curaprox brushes as well and one of the best tips you gave me and made such a difference when brushing teeth.

kind regards
ian

So as I like to do each Friday a little update now i am in 6th week post treatment.

Have have a much better week than last and feel been making good progress in many ways.

Food wise ...still take 2 ensures a day sometimes 3, but have dinner each night and have had roast beef  gravy and mash, managing small crusty rolls again which delighted with as I love them freashly basked.

I have even managed twice to have a peppanoni pizza...bit dry but was ok and large hot dog on soft brioche roll with chunky chips as side.so feel little experimenting with food working away again ok
I am constantly drinking cold iced water and must drink at least 4 litres a day and sometimes more. 
Great beliver it helps so much and maybe co incidence but my mouth is not so dry this week and have feeling of some saliva again which is a godsend.

Have reduced my slow release tablets this week with no adverse effect and only max of 2 oral morph..one morning and one early evening. Maybe doing out of habit now as I feel I need less and less and going to reduce further from next wee. Gums left side mouth a little raw and tender so oramorh helps.
Fatigue is still there but again I think Im awake more and more..its just fragmented and I can be up from 10pm to 4am then bed then up again 9am ish...all varies.

All in all I feel really quite good this week and apart from fatigue and no real energy to do much, dont really feel I have too many symptoms to complain about>

Touch wood this continues and am hoping this gets better and better.

Hazel

nice to hear you got on well with scan and let us know of results.

Im hoping you were right about me hitting the marathon wall and feeling like this also gives you a feel good factor mentally when you feel progress being made.
I hope this is also encouragement for others who when going through rough times, know that things do get better and calm down albeit slowely

best wishes to all

kind regards

ian

Hi Ian, been following your great progress ,awating approval to post so here i am I am on session 6 of 33, no chemo, just getting started really, your info has been  invaluable. Thanks also to Sharon, i read your blog, and that of Gary, amazing how helpful you have been to people.. 

Hi TFS

this is Hazel I am week 16 post radiotherapy welcome to the site .Think u are in Spain ? We spend quite a long time in the Murcia region well a few weeks at a time anyway. 

I have also done a blog www.radioactiveraz.wordpress.com

pop by and give it a read 

welcome to the club that none of us wants to join butbherevwe are

Hazel

Hi TFS

Thank you and glad to have been some help.

Post and chat away and you dont need approval lol

Keep us up to date with your progress and journey and ask away anything at all as if I can help in any little way id be glad to.

Lets hope the side effects for you are kept to a minimum and as you say into seesion 6 and I hope my journey has helped at least outline some potential side effects and the different stages and timings.
Im into my 7th week post treatment and will update for those who are interested plus I actually find it quite theraputic. Reason I started this blog was to help at least one person so glad I have done so.

Stay strong and positive as there is light at the end of the tunnel and in no time at all you will be at the stages I am going throug now, which is far more positive and slowely feeling of progress.

Let me know if I can help further at all and you are also welcome to friend request if you wanted one to one chat etc

kind regards

ian