Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

Parents
  • Hi Laura

    and thank you for the encoragemet as well as a thanks to Hazel and all.

    I'm glad you have found the blogs/site helpful and there are a few of us in this club at various stages of out treatment and its a great support and great place for tips and helping one another.

    Its surpising how little tips can make the differnce and how you wouldnt think of things if not told beforehand.
    At least you have the start of your treatment plan and also depending on potential teeth extracting as this will delay it slighly to allow the jaw to settle.

    Depending on your circunstances, I always advice to try and get the radiotherpay sessions first thing in the morning (95% mine were 9am) as it makes a big differnce. You get treatment over with and frees up rest day for rest/taking meds and not breaking up day with a mid morning/afternoon appointment plan. Might not be your preference but I would recommend.

    Keep us posted, stay postive and good luck and best wishes with plan. We are all hear for you and rooting for you.

    Kind regards

    ian

  • sorry Laura,

    just noticed I have repeated myself re recommendation ..sorry lol

    I will wind my neck in

    kind regards

    ian

  • Almost hafway through my treatmeant and Im having chronic hiccups, I was awake 2.5 hours last night and got hiccups now, apparently Morphine can cause it but the radiologists today seemed surprised and hadnt heard of it before. I dont normally have indegestion problems or hiccups, wondering of anyone else has had this problem? apart from that my throat seems better today the new meds are working well.

     

    Dave 

  • Hi Dave

    Sorry to hear of hiccups and havnt heard of before either and touch wood, not something that I was hit with. Hopefully just a minor very temporary blip and glad to hear your throat seems better and meds working

    kind regards

    ian

  • Thanks Ian just tried some Gaviscon and the hiccups stopped emmediatley so Iv got something to stop it at least, Did some googling which I dont like doing regards medical stuff but seems fizzy drinks can cause it and Iv been drinking sparkling water and orange lucozade which have been going down well but could be the cause so i`ll knock them off for now and see what happens.

    The inside of my throat and mouth looks shocking but its only stinging and not too painfull at the moment, tomorrows session will mark my half way point.. Im doing regular gargling and will try TCP too.

     

    Dave

     

      

  • Hi Dave

    i find gaviscon dual action tablets help in quite a few situations .but nit has hiccup.am reducing my co codomol and today reduced anither tablet and am suffering so will ride it out mid need be up it tomorrow !!!

    take care well done on throat u find good days n bad days no rhyme or reason but nearly half way there 

     

    Hazel

     

  • Hi Dace

    Well at least stopped so thats good.

    Im no medical expert at all, but I do remember being told not to drink any orange drinks etc..something to do with acid. Again only my opinion to go by, but I personally would not gargle with TCP as very strong and was also advised not to use any mouthwash at all with alcohol content

    I was prescribed Difflam mouthwash that I gargle with and makes a big difference.I was also prescribed Caphosol tablets which is also a mouth rinse but was advised even this was a little more effective than Difflam as it apparantly helps clear muscas.

    Just an idea but perhaps a word with treatment team over oral hygene during treatment might help and hopefully something prescribed.

    kind regards

    ian

Reply
  • Hi Dace

    Well at least stopped so thats good.

    Im no medical expert at all, but I do remember being told not to drink any orange drinks etc..something to do with acid. Again only my opinion to go by, but I personally would not gargle with TCP as very strong and was also advised not to use any mouthwash at all with alcohol content

    I was prescribed Difflam mouthwash that I gargle with and makes a big difference.I was also prescribed Caphosol tablets which is also a mouth rinse but was advised even this was a little more effective than Difflam as it apparantly helps clear muscas.

    Just an idea but perhaps a word with treatment team over oral hygene during treatment might help and hopefully something prescribed.

    kind regards

    ian

Children
  • Thanks Ian Im using the TCP well diluted 50/50 mainly because my mouth looked so bad and I did ask a radiologist if it was ok to use and she said it was, having said that I woke this morning and the roof of my mouth is bleeding so i`ll stick to the salt and bicarb washes for now as well as the Difflam. Thanks for everyones input its good to share experiences.

     

    Dave