My hubby was prescribed morphine as a just incase he needs it!  Never needed to tho.

Hope you can get some relief soon 

Chrissy

x 

Hi Matt don't be silly there's no prizes for avoiding a feeding tube. If yiu need it yiu need it imagine the next few months no food very little nutrition or hydration you will end up hospitalised Nevee mind recovery that phase I can be just as hard as treatment  as once yiuve had yiur last radiotherapy it continues to work for many weeks read some of the threat in here .Please be sensible .Aw for mouth issues ask for gelclair it may help . But ti be honest radiation virus are just that burns they burn the cancer away and although the planningbtrys to avoid damaging new tissue it can't be helped healthy tissue gets radiated. 
morphine is readily issue single form of oramorph tomstart with inwas in 40 mil a day at my worst many have fentynal patch's as well. We don't get hooked as long as a phased withdrawal is done when time to finish. 

Hazel x

I'm in the hospital now as it happens. I've just had a word with the dietician. She's very concerned. She asked me for the pain on a 0-10 scale. 10. Its without doubt the worst pain I've ever felt, and I've had a brain haemorrhage. They're prescribing something that works like morphene but isn't morphene. It's hard to concentrate to be honest. She suspects a possible infection so prescribed antibiotics as well. She's very nice and understanding. All I'm doing is a series of nods and shakes. Thank you again for your reply

Hi Matt no worries get them to check for oral thrush as well that's painful on top of everythjng else. You'll need Flucozonole for that hooe yiu get sorted 

Hazel x

So sorry to hear about your pain and struggles Matt. Definitely get a feeding tube if you can - it's never a sign of weakness to support yourself in whatever way you can. My partner really benefited from the tube and needed it for most of the treatment and a couple of months in recovery. 

Fingers crossed the pain can be managed with these new meds. If you ever feel like a drug isn't working for you - please chat with your health team. Everyone is really different and there are loads of alternative medications that the team can prescribe for you to collect at the hospital. Take care and keep in touch x

Hi there Robert. Well done for getting through treatment!

My partner found that food still tasted odd for the first 4 months after treatment. He kept eating even though nothing tasted nice - trying different textures and flavours to keep his jaw and swallowing action. Sometimes he felt so depressed that food wasn't ever going to be enjoyable again! Then from 4 months post treatment, everything started to improve. He's 7 months post treatment now and can enjoy old favourites like really spicy curry, or crusty bread, or greek salad. Everyone has different recovery journeys and expectations - but if you keep eating for functional reasons, eventually you will enjoy it again! 

Best of luck and keep in touch x

I'm sorry you're dealing with an infection Bushy. Hope it clear soon. Glad to hear you're doing ok otherwise. Fingers crossed the taste returns soon! X

Thank you, I massage my neck to help the lymphoedema but the consultant said it may come and go for the rest of my life, 6 months post treatment I've got to be happy how things are progressing 

Yes, you're very right. We're finding happiness in all the small things he can do.