Hi Ian

i am 7 weeks post radiotherapy hang

In there it’s a tough road I did 35 radiotherapy sessions 2 chemotherapy.

i have also done a blog www.radioactiveraz.wordpress.com takes u from diagnosis to present day.newlymarried on here is good if u have any questions just shout out. Mine was HPV 16 + cancer of right  tonsil and lymph nodes 

hazel aka RadioactiveRaz 

good luck 

Hi hazel I see this was 2018 I was wondering how you got on and could tell me the treatment you went through , I have just been diagnosed with tonsil cancer and going for my first CT scan tomorrow any info would be gratefully accepted.

Hi Davy yes I'm Almost 4 years post  radiotherapy and chemo for tonsil cancer  happily living my life if you read through some of the thread on this posting you will start to get an idea of what we all went through and I'll put a link on for my blog that should help you to be honest with the other waiting is the worst part once you get a Treatment plan everything falls into place any questions just pop on here and I'm sure either me  one of the guys  will get back to you it is hard I can't lie but if I can do it anyone can.

I had 35 sessions of radiotherapy and two of a planned three sessions of cisplatin and day one and day 21 the third one was cancelled as the lump in my neck had gone

Hazel x

my blog is www.radioactiveraz.wordpress.com

Hi Davy yes I'm Almost 4 years post  radiotherapy and chemo for tonsil cancer  happily living my life if you read through some of the thread on this posting you will start to get an idea of what we all went through and I'll put a link on for my blog that should help you to be honest with the other waiting is the worst part once you get a Treatment plan everything falls into place any questions just pop on here and I'm sure either me  one of the guys  will get back to you it is hard I can't lie but if I can do it anyone can.

I had 35 sessions of radiotherapy and two of a planned three sessions of cisplatin and day one and day 21 the third one was cancelled as the lump in my neck had gone

Hazel x

my blog is www.radioactiveraz.wordpress.com

Hi all 

My hubby has now got a date for the procedure to stretch his gullet. First week of July. He's so looking forward/not looking forward to it.
Hoping it will sort out his ability to swallow as he can't even swallow a sip of water at the moment. Obs being peg fed. He's so fed up with that!! 
Love to all

Chrissy X 

Hi there Chrissy,

I'm so pleased he's got a date for the procedure - it must be so tough for both of you continuing with the peg feed. Obviously never fun to undergo another procedure - but hopefully that first cuppa will be so worth the wait! Take care. Love to you both x

Thank you so much Weaselbear 

xx

Hi Chrissy fingers n toes x that all goes well. Sending hugs and please keep in touch. 
Hazel xx

Hi Chrissy

sending my best wishes to you both and it can be really tough during and after treatment so hang in there and hope once procedure carried out, it all becomes a little more comfortable and bearable with swallowing and able to sip and drink water.
 

kind regards

Ian

Thank you Ian x 

Thank you Hazel xxx

Hi Chrissy, hope everything goes well for your hubby and he can get rid of the peg tube, I'm now on antibiotics for a month as I've got infection in mouth, other than lack of saliva and food not tasting nice I'm doing ok back up hospital August, please let us know how your husband gets on please 

I'm currently on dose 11 of 35 for maxillary sinus cancer. I was told the radiotherapy would hammer my mouth and tongue. I underestimated by how much. After only 2 weeks I can barely talk. Im struggling to eat, drink and swallow. I sleep 20 hours a day. My tongue, even in a resting position, stings. Brushing my teeth stings. It's to a point I honestly could cry. They've given me numbing mouthwash which stings. Synthetic saliva spray which stings. Oral gel which stings. Water stings. Juice stings. Cocoedemol stings. I cannot get ahead in any way shape or form.

Does anyone have any advice for pain relief other than the ones I've listed already? 

Thanks. 

Hi Matt 

I got to a stage where lukewarm water 15 seconds in microwave some days 10 seconds took the edge of the water. I couldn't drink two water still can't only bottled water.

But during treatment I had same issues as you. I had 35 sessions also. May week 3 I had a n g tube fitted you may need one or if you've a peg start to use it. Fir st least 5 weeks I rinsed my mouth but all medication food  supplements snd hydration went via the tube. The treatment is brutal it has to be purely where the radiation is targeting. Our mouth area is sensitive my blog may help you   www.Radioactiveraz.Wordpress.com

hazel x