Hi Joy good to hear from yiu ,I'm like yiur husband niw almost 4 years post radiotherapy dry mouth is my only issue. 
scary  how we went through it and yet here we still are.

hugs Hazel x

Hi Hazel

my Hubby still has problems with swallowing . 5 months post. 
Had Videofluoroscopy last week - shows gullet has tightened. Awaiting news from consultant. 
 

Chrissy B 

Hi Chrissy live heard of one or 2 in similar position they've had the area stretched ? Hope he can still manage to eat albeit soft foods for now. Sometimes our cancer just keeps on giving am sure he's in good hands. Did he do swallow exercises all the way through treatment they aren't easy to do when weee being battered from all sides Please let me know what consultants say , Thet can do an oesophageal dilation part if being sedated endoscopy I've never had one so can't comment  

hugs Hazel xx

Gullet tightened and other problems, that wasn't gone into. Yes stretching was mentioned by SaLT. But have to wait for docs.

He's still being peg fed. Nil by mouth. Only sips of water. He's now been told to stop doing the exercises. 
 

xx

Hi Chrissy   Please let me kniw what they have to say. Hugs from me me

hazel xx

Will do xxxx

Hi Chrissy, I hope they get your husband sorted im at the same stage 5 months post treatment, swallowing is ok but taste and especially dry mouth not good, ive now in the last week got a slight swelling at the front of my throat, will have to keep an eye on it , and crackling in my ear, you may get the all clear, but the journey is far from over.

I got the gel yesterday and took before I went to bed and had a decent night's sleep. Pain has subsided - it was mostly the dry mouth over night which was painful in the morning.

I bought a nebuliser and humidifier so hopefully they will help. Another thing I bought which has worked for the last few nights is a  backpack with a water bladder normally used for running/cycling. Makes a difference not having to get up and drink from a glass when there is a tube next to me I can sip on without seemingly waking myself up so much.

Saw the speech therapist and dietitian today who said although the throat looks really sore, I am still swallowing well and have flexibility in my jaw so they were very happy with my progress which was a bit of a boost. Day 16 today so into the 2nd half and although it was a bit of a struggle to eat at the w/e, I seem to have got into a rhythm and continuing to eat solids although taste buds shot to pieces - licked some honey off a spoon after putting in some tea and it was so sour

We discussed additional pain options so at least I know what I can get when and if needed (as per above posts... patches etc).

Sorry to hear of some of your struggles, guess I have those delights still to come.

Hi Bushky. Yes sometimes it's the cancer that keeps in giving we can get ongoing issues for a good while. My latest ent scope o Tuesday showed my vocal cord cyst is still there. It's in the file of vocal cord caused by yes the dreaded dry mouth. It's harmless it doesn't cause me any issues it's just a little known side effect. I've also got a touch  of late onset fibrosis  back of neck so just all be aware I can control it by stopping what I'm doin. For me it's chopping bpveg just the angle of arm and neck. So another job for John. Seriously we do get treated and cured but the side effects can keep coming so please be aware , I also have burning tongue again manage it by avoiding trigger foods cheese tomatoes acid and citric. If I really want a cheese and tomato sandwich inhave it just aware that's I may pay the price later. Eg today I've an ulcer but the cheese sandwich was worth it. Lol

Also guys watch out for silent reflux it can feel like a lump in throat or again a need to constantly clear throat.  PPI from  gp eg omaprozole can help so another  tablet. 
hugs ti all Hazel xx

im 4 years almist just returned from Spain utbwas very wet  biked 800 km