Hi Hazel hope you're well, my appointment on the 23rd got cancelled as consultant had covid, but he did give me a telephone call just to say I told him about the Xylimelts and how good they're, he'd never heard of them he's wrote the name down and is going to look into them, I'm having feeding tube taken out next week, taste is improving very slightly but saliva isn't, fatigue is getting better but still have an occasional nap in afternoon, ive got pet scan end of March and results a week later, he's very hopeful tumour will be gone, but until I get results back I'm not going to get carried away.

Hi. I am very well thank you. Yes the xyimelts are giid sadly n i c e the medical regulator won't approve them for prescription usage. More the pity's . Am sure  all will be ok with your pet ct scan. Occasionally hot  spots from radiotherapy do tribes still show up just warning you. If that's the case t he consult either biopsies or re scans at 3 month. Just remember is highly unlikely that treatment fails. Look forward to hearing how you get on. Hazel x

Hi Graeme. Great tip. Forgot all about those we bought a toastier maker deffo a game changer. Well done on mustard I'm not too good with it even after 3.5 years   Just shows kije yiu say. We're over in sosin betn here 10 days both Jihn n I tested positive on Wednesday csn yiu believe it. We had slight sniffles was meeting up with a 80 years old tested and the red line appeared. We're fine throats a bit tender but nothing compared to radiotherapy. Stay safe and well done in 3 years. 
Hugs Hazel xx

Hi Graeme nice to see you here and hope I find you well.

Great tip for all and I would have used this at the time and great idea.

Finally bitten the bullet and have Tenerife bookd for end August so may well see you at one of your sell out gigs if you are still playing.

Take care chum

kind regards

Ian

Hello ... hope you all doing well... was wondering if anyone still gets ulcers more than 6 mths out of radiotherapy? I have 2 ... one on tonsil bed and one inside mouth ...I'm a little concerned but I guess it could still be radiotherapy damage ? I'm 8 months out now and apart from fatigue been doing ok .. 

Hi Kat

I had a little trouble with mouth but more oral thrush rather than ulcers I would say and was presribed some cream/ointment. I dont remember timelines on when tho.

If persists phone GP and they should be able to presribe something to help

Good to hear you are doing so well and fatigue normal.

regards

Ian

Hi yes I'm 3 .5 years and done foods still hind me ulcers tomato anythjng sci-fi snd dont times minty. Rule of thumb is if still there 4 weeks later contact cancer team. I use bongela or from Amazon aloclair   There's always gelclair if g o will prescribe or try iglu from chemist I find them all good. 
our mouth are still sensitive I'm say in Spain and yesterday a new ulcer popes uo on tongue. 
Hazel xx

Hello everyone. I just wanted to update you on my partner after all your kind support. The oncologist called us with the results from his final post treatment PET scan yesterday - and it's a 'total response to treatment, no evidence of cancer found'!!!!! Obviously nothing's ever 100% certain as you learn when you join the club, but it's as good as we'll ever get! It hasn't really sunk in yet - we're both rather shell-shocked!

Thank you all so much for your support and wisdom throughout this hideous affair - it's meant such a lot to both of us. I hope that I can be as helpful to others going through it as you have been to me. X

Hi brilliant news. Yes it's a strange alien feeling remember Jihn and i drove home in silence   It was a case if ok ehst now. Onwards and upwards reslky happy to hear if another successful treatment. Hugs to. Both of you xHazel cc