Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Hi Kemp,

    Treatment in this area is very scientific and precise now and is tailored for each individual and mapped out by consultant. We have come a long way in this area of treatment and although one of the most challenging in terms of treatment/recovery, it is one of the most successful.
    I was told this by my consultsant and one of the main reaons why I tried to keep a positive attitude and outlook fron the get go.

    just a small blip and journey to get you back on track but you will come through and see the light at the end of the tunnel as I kept saying.
    There are sooooo many postive stories on this blog I started a few years ago and lead a normal life with no real lingering side effects and in many ways I have a healthier lifestyle than i did previous

    I have also posted a link to my blog outlining my journey which you may find helpful and remember we are all here for those going through treatment/recovery anytime anyone needs support/help and advice as we have actually been on the journey and can share first hand experiences

    Good luck to all those going through treatment/recovery 

    radiotherapythroat.home.blog

    Kind regards

    Ian

  • Hi Ian Thankyou for reply I've read your blog and I Thankyou for sharing your experiences it as giving me hope like I said to hazel. I'm the same as you I've been told I don't need a Peg I am a little worrried about this due to it seem like a lot have them but I'm going to try to eat as much as I can and try the exercises but until your in a situation you really don't know what it is  going to be like 

    I have said to my family thou I'm not going to make myself ill trying

    If everything tastes awful and this will put me off ,I have a phobia of vomiting so worried this could happen I've explained my phobia to the mustard tree at the hospital in Plymouth where I live they have said I will Be given anti sickness drugs they have also suggested counselling  
    my partner like yours will be brilliant (well he better be ) but he tells me off for googling Everything but now is happy I have found this site and also a Facebook site

    I hope you all have a lovely Christmas and a happy new year 

    and how weird it sounds I'm now looking forward to getting things started X

  • Hi just remember when you start treatment the anti sickness meds are always the cheapest if they don't work tell the team there's lots of others. I was lucky wasn't sick once so hopefully sane for you. If  like me yiu need the n g tube it's only a moments suffering to get it unplaced it was a lifesaver for me. 
    Hazel x

  • To be honest I was never offered a PEG and in many ways was happy enough I didnt
    Just a personal view but something else sticking in my body albeit I can see why fitted in  lots of cases but it is not mandatory and suppose judged by consultant/support team.
    I was never offered the option and just went along with planned treatment so I would not worry too much on the fact that they have not fitteed a PEG for you.

    As stated in blog I took the view in recovery that food was medicine and not something I necessarily had to enjoy. I was on the Ensure supplement drinks for ages and you can just about get used to them.
    I drank the banana flavour one really cold from the fridge and was a little more palitable.

    There will be times when you are asked to increase your calories intake when you can eg full fat yoghurts/creamed rice/creamed mash etc to get calorie intake up and times when you might need to pull carories back to a more healthy choice.
    You will have a support team and my dietician was great and they monitored me all way through.

    You can speak to your support team/dietician etc at any time and not just on sheduled appointment and they will help guide you and support you.
    You also have all of us here for any advice and support. Stay off google if you can as can give out misleading information/advice and often out of date and generelised. Stick to NHS sites or here/macmillan where you will get first hand help and from people who have been through the journey.

    Your partner is important too and I particularily mention this in my blog as although we are the ones going through the journey, so are they with you and their support is invaluable in so many ways and are often unsung heroes/heroines during treatment and recovery.

    I totally understand wanting to get things started as I felt same way and just wanted to start asap.

    Wishing you all the best and keep us posted. We are all here for you

    kind regards
    Ian

     

  • Hiya was just wondering how things are going with hubby I hope you had a good Christmas X

  • Aww thanks for checking in. 
    Very fatigued. Voice has gone now. He's been a really great patient. No wobbles at all! 
    We had a quiet Christmas Day. ( mostly sleep) 

    Just a waiting game now, for recovery. Next appointment t ent 10th Jan. 

    x

  • Hi Chrissy sleep is good those first few weeks it was feed mouth hygiene sleep repeat. Hang on in these next few weeks are hard. Hazel x

  • Yes you are absolutely right. Feed mouth hygiene sleep repeat.

    thank you xx

  • Aww bless you both that's my birthday 10th jan so fingers crossed he is be fine

    week to go for me to start my journey X