Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Yes best advise my oncologist gave me was kerp off the Internet. It's a lot to take in but you'll get there we all did. It's the fear of the unknown if any cancers a giid ine ti get it's ours. The treatment can be brutal the recovery king but the results are worth it. 
    I'm off to Spain in 3 weeks living my life and riding my bike 

    yes please keep in touch 

    Hazel 

     

  • Enjoy your biking holiday Hazel! We're going to keep on hiking around our beautiful area of Wales until the treatment stops us. 

  • We've managed 2 Welsh trips this year.  Anglesey Ceredigion and Caernarfon. Love Wales yes walk as long as you can nothing g too strenuous though xc

  • Hi Bronwen

    I have read your post and just wanted to pop by and say hello. My husband was diagnosed with squamous cell cancer in his rught tonsils with lymph node involvement 5 and a half years ago and is going for his final appointment with hus oncologist and ENT consultant on September 14th where he will be officially discharged and cancer free. 
    Like your partner he was a fit 54 year old running 30 miles a week, non smoking , vegetarian and minimal alcohol drunking when a lump appeared on the right side of his neck. The diagnosis was a big shock to us both as he felt so well.

    After an initial biopsy and tonsillectomy he had Chemoradiation- 5 cycles if Cistplatin and 30 fractions if radiotherapy over 6 weeks which I wont lie was ver tough going but definitely doable.

    I just wanted to say that it's certainly very tough for the person going through it but its also tough for the other half to watch them go through such hard treatment and feel so helpless. If you ever need to chat to someone whose been tbrough what your about to embark on then please feel free to send me a friend request and we can certainly chat. Im sure Hazel, Dave and Ian plus others will offer advice and the benefit of their experience from their point if view but it can feel as equally lonely going through it as the partner.

    Good luck and best wishes - there us light at the end of the tunnel

    Emma 

     

  • Hi

    i think the advice about the internet and Dr Google is spot on. I realised that so many sites are US and they are usually quite alarming. Probably because they are private health companies trying to get people to check themselves out. Thank goodness for the NHS. 
    Just had a Covid scare. Son stayed, developed a cold then had a call a friend had tested positive. He left straight away and went for a test. Anxious 24 hr wait to find its negative. But of a wake up call. 
    x Jane 

  • Hi Jane Everything x that's it's just a cold.Yes tge Internet isn't regulated so anyone can advertise anything. Stick to here a nd Macmillann,plus the statistics are at least 5 years out of date.plus they include the heavy smokers and  drinkers whose rumours respond differently I was told by my oncologist.

    Althoygh I was treated pre covid what we did in the lead up to treatment snd during was limit my social contact especially with having chemo. People knew if they had the sniffles stsy away no hugging etc x

    Hazel

  • Hi Emma,

    Thanks so much for your lovely message. It's really so kind of you and other survivors to keep replying to us newbies years after treatment. I hope that I can be half as helpful to others in a few years!

    This enhanced delay caused by covid feels completely unbearable. We've just worked out today - going by what they've told us in terms of expected wait times - it will be probably 95 days from the first referral date to first treatment; totalling 33 days over target! It makes me feel so anxious as obviously these targets are in place for a reason. The consultant told us that the additional wait shouldn't make any difference, but obviously that's much easier for them to say that! 

    Thanks,

    Bronwen

  • Fingers crossed it's just a summer cold or allergies Jane. It's not fun this waiting for results malarkey is it! Hope you get the results back soon x

  • In the scheme of things it doesn't targets are set by bean counters the trusts get fined fir missing them. Well pre COVID they did. Just don't stress in things you've no control over. Spend time building hubby up double chocolate magnums are good   
    hazel xx

  • It was negative. Anxious 24 hrs