Hi  ... rung the bell yesterday on treatments. Coping ok but side effects a bit worse .... am wondering if anyone started taking any sort of vitamins straight after to help recovery ? Also Hazel saw you drunk green tea throughout ... did you continue that ? Also when did you start drinking tea/coffee again... I couldn’t taste it now but do miss it !

Hi Kat 

well done in ringing the bell buckle down for the next few weeks thjngs eill possibly get worse sorry. 
re green tea nope soon list that taste. Ordinary tea I don't drink I do drink I herbal ones now can do peppermint toon a few months. As for coffee I can't do black anymore too bitter but I csn do just milky coffees woujd say I started around 4 months post treatment. 
ibdid start taking a multi citizen soon after treatment finished now take a cod liver oil   Vit  d in winter and b12 daily. 
good luck remember the treatment does continue to work for a good few weeks. 
if I can help just ask Hazel x
 

Well done its a great milestone to ring the bell but this is at the end of the treatment and you will feel horrible, hang in there it will slowly improve, keep the water, calories and mouth excersises going it will pay off in the long term.

Dave  

Thank you both for your replies. I’ll start taking multi vitamins today I think. Definitely not easy at the minute ...fatigue and motivation to eat biggest struggle but

each day getter bit better.

Hi all you amazing people! Firstly - I just wanted to thank you for such informative and inspirational posts, and to wish you all so much strength and good health.

Secondly - I have a question about my partner's diagnosis, and was pointed towards this thread by a forum moderator. I hope you don't mind me posting here...

...My partner was told at an emergency ENT appointment 11 days ago that he probably has tonsil cancer. He's been for some scans already - with more booked across the weekend. However, we've been told that the biopsy won't happen for approx 3+ weeks as it needs to be carried out under general anaesthetic - with a 2 week notice period due to covid. Obviously this is an incredibly stressful time for my partner (and me) and we're just so worried that the cancer might be spreading during this wait. I guess we're just looking for some reassurance that this timeframe for biopsy is normal as I've read quite a few other patient stories about tonsil cancer diagnosis that seemed to work a lot faster than this. I know everyone is different, but I just feel so powerless and concerned that this is moving so slowly. Many thanks for any advice / support you can offer.

Hi, others will be along soon to help, but im sure you will find they will agree delay of weeks is not unusual and doesnt seem to concern the docs too much. However the mental torture is real, and not at all nice.

A leap of faith in your partner's medical team will do wonders for you all mentally, although it is not easy and the covid era must make it much more stressful for you all.

None of this is good, but you will find great support and advice on here, i would have been lost without it, practically , mentally and spiritually.

best wishes. Graeme.

Hi Weaselbear, I know exactly how you are feeling once I was told I needed a biopsy I would have had it that day to speed the process up, unfortunately we are on a conveyer belt of patients needing treatment and have to get in the queue, trust your team they will be doing their best to get your partner treated I'm sure, I can only add that I was told that HPV is one of the most treatable cancers, the treatment isn't nice but the outcome is very positive. Stay positive it really helps.

Dave.

Thank you both for getting back to me so swiftly - I really appreciate it. You've both given me some reassurance and useful tips for getting through this. It's weirdly quite calming to realise that others have walked this path before (although I wish no-one ever had to!)

You're right about the mental torture of waiting. I thought I was quite a resilient person before this - dealt with my fair share of life's issues, practice meditation daily, have overcome my own severe anxiety - but nothing prepares you for this! I have nothing but admiration and compassion for anyone dealing /who has dealt with this; you're all superheroes.

Hi 

Thus is Hazel aka RadioactiveRaz,forsy of all sorry yiu amd your partner have found yourself in here. Next month I am 3 year so post radiotherapy for tonsil cancer with several affected lymph nodes I am niw living my life as normal. As for the time frame to guve yiu an indication of mine I first found the lump called Larrybthe lymph Way back in March 2018 was in Spain so thought ok it’s a pull I had been cycling in windy weather. 

Fast forward  tin14 May went to g p immediately fast tracked to 14 day cancer pathway the wait unto 29 May was horrendous indiagnisied my self dead Moreno than ince a day so KEEP OFF DR GOOGLE please. 

Saw consuktantb29 May f n a needle done went back week later s c c diagnosed. Biopsy booked for 19 June results 26 June treatment started 16 July  a wait of 63 day so which is just within n h s guidelines. So don’t stress it’s nit a quick job as everythjng has a time shaken the cancer won’t spread  as the lymph nodes will donthere job in holding it back as mine and many other in here can testify ,I have a blog www.radioactiveraz.wordpress.com yiu May find it helps. Any questions please ask , also he yiur partner diagnosed h p v positive is ine if questions timask if yiu haven’t been told yet as it does help. 

Hazel x it’s horribke but look at us in her x

ps hi guys hope yiu are all well