Hi gang

Your leader checking in the posts went into trash can you believe that. 
yes agree entirely I've a few that I am in touch with have a what's app group I run with a girl in South Wales. We've 8 at min going through various star. You wouldn't believe the hoops they have to go through got one guy 6 month post treatment struggling to eat no dieticians onky gets phone calls he's 6 ft lost 25 k g but as Isn remembers you neeed constant pushing moan over. We got 18 weeks away lastvyear can't see when we will get back to apartment have taken another year so hoping for September with a glimmer of hope for a month in June. How are you all Isn I know how you are playing you tube all day long. 
dave were top of league. 
Graham feel  for entertainment industry everything x for vaccine. How's are you seen Spain's on rise to ge expected though you had longer at Christmas including 3 kings so fingers x 

typos not too bad. 
love Hazel xxxxx

Nice to hear from you all, hearing of surgeries cancelled in places in Scotland and N Ireland PRE radio/chemo, must be so worrying. England and Wales likely same then as Hazel alluded to?

Entertainers like myself, a year comin up with next to zero work ( just to top up the hit i took in treatment and recovery of 10 months). But i will take it over being in a sitch where im in a queue with potentially grpwing cancer just now. That is my perspective today.

Glad we have each other.

Hi, Have found your thread when looking for support on tonsil cancer and recovering from the side effects of Chemo & Radiotherapy.  My husband was diagnosed early Jan following a dentist being concerned during a routine dental check.  He was given diagnosis of T3, N2, M0, P16 positive after biopsy and CT scans.  Told 80% chance of full cure - we'll take them odds, thank you!!.  He is now 2-weeks post treatment - 6 weeks of daily (5days a week) radiotherapy with Chemo (Cisplatin) on 1 day a week for the 6-weeks.  He hit his lowest point at the end of last week but I do think we are seeing small signs of improvement this week.  The biggest issue at the moment is the thick horrible mucus build up in his mouth & throat.  He is not eating by mouth at all but is taking in fluid; will manage about a litre of water a day.  He as a RIG (some call it a PEG) fitted through which I administer further water so he takes on about 2 litres a day.  He is meant to take 4 x 200ml bottles of Fresubin via the RIG, we even now have a pump to administer it drip by drip over the course of several hours.  The problem currently is the mucus is randomly causing him to be sick, (he is petrified of being sick).  He has Ondanstron & Domperidone to help but still is sick every other day.  This causes set backs with the feeding and currently only getting max 2 bottles a day.  He has so far lost 1.5 stone since the beginign of the treatment.  I would be so grateful to hear of peoples tips to try and alleviate this mucus which in turn will hopefully stop him being sick.  We can then get the full quota of supplement bottles into him and help speed up his recovery.

Hi Mooka,

While this is an old thread I started a couple of years ago there is a lot of tips and shared experience withing.

I have posted a link to the blog I kept from the get go and this will hopefully help provide some focus and there are also various tips picked up along the way.

hope helps

radiotherapythroat.home.blog

kind regards
Ian

Hi Mooka

firstly welcome to the forum and well done to hubby for getting through treatment. Mucus is really the devil it's our bodies wsy if trying to heal the damage done by the treatment. I was 10 weeks before my mucus disappeared as quickly as it came. I was prescribed carbusistine to try to thin the mucus it worked to a point. You can also try getting him to sip soda water I found the bubbles helped to ease the mucus. It's a case if the more water he can drink the easier it gets. The mucus is often replaced with dry mouth which I still have to a certain extent ibsm slmost 3 years post treatment. Your hibby isn't alone on the weigh loss most of us end up loosing weight once treatment is finished. 
I have a blog like Ian's it has links to others it may help www.radioactiveraz.wordpress.com

hope thus helps  he does need to aim for 2500 calories and 2-3 litres of water it will aid his recovery no matter how hard it is we've all been there and you do come through the other side  

Hazel 

Hello Mooka . 
I am almost a year now since my last radiotherapy for base of tongue . T4 N2 p16 + 

it's an awful treatment Mooka but like you say it is a cancer that does have a very good outcome so focus on that . 
 

I too remember the Mucus it goes as quick as it comes it just doesn't seem like it at the time . But then you get the dry mouth that I find is my main issue now I hate it especially at night . Is it getting better ermmmm I'm not sure I maybe just learning to live with it but it is still early days even for me . 
 

I was also very very sick during my treatment 3 hospital stays because of it it's not nice and I believe the radiation causes it and out delicate stomache due to not eating properly he should have been given lanzoprazole or the like to help if not ask it does Help . 
 

I was also PEG fed I would have my water and everything through it , the thing is we just feel so awful that we don't even have the energy to do that . I also lost 1.5 stone and not a big girl to start with so weight loss Is normal in a year I have only put in 5lb I find eating very tricky , the taste , texture it's all off for me and having a dry mouth doesn't help I morn for snacks ! But I have progressed to a sandwich now ! Food & eating isn't an issue for some but it has been for me .... your husband is just at the beginning I wrote a diary and it was 16 weeks post end of treatment that I turned a corner so if he goes like me say he has a while to go yet .... take one day at a time & when that day is over you NEVER have to do it again .  I know how he feels about being petrified of being sick it's horrible we have nothing in our tummy and it burns your already sore throat . I wish him well THIS WILL get better just not that quickly  ( in my case ) ! My oncologist told me it takes 18-24 months to feel somewhat normal . Hugs to you . Hang in there husband x x x xx 

HivGinny

great to hear from you. I'm almost 3 years now post treatment. Dry mouth is still there but mostly night time when I wake up I take a xyimelts at night which helps immensely. In the daytime I have periods where my mouth is normal eating wise most days are fine  eg ti days tea pork chop in mushroom gravy, mash carrots and cabbage. Followed by strawberries and yoghurt. My weights back to normal it was 15 month bef I started increasing weightv. I did email you not sure if you got it. 
hows hubby ? 
hugs Hazel xx

Hey Hazel 

you always give me hope throat thing can and will Improve as the years go on . If I didn't have such a dry mouth and the muscles in my throat would get stronger I would I think feel practically normal .... I mean taste is off but that actually doesn't bother me that much . I do use xylamelts I use two during the night , but my throat gets so dry still I also use the spray from boots I just wish they would omit the Minty flavour ! Mint is so strong now . You are eating pork chops ! Urgh lucky you I eat little or no meat I find that very difficult . But hey ho I will take the clear scans and it's still early days isn't it . Oh Chris ( husband ) is doing really well he eats it all ! X x x 

Hi Ginny yes you are still in early days. Lamb chops jersey new potatoes tomorrow no mint sauce though too strong for me. Do you still do your swallow exercises they will tell. Yes thank god  for xyimelts !!! 
great Chris is doing well xx

Keep  in touch 

glad I give you hope. You'll get there we all do xx