Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Hi Mo you’ve come this far yiu can do it again keep in touch Hazel holidays can come later xx

  • Hi Amber-Firstly so sorry you've been diagnosed with this-its pretty crap but there is (as you will now know) a really good success rate at curing this cancer type-remember that.

    It was my husband who was diagnosed with this-this time last year & this time for you now I think was the hardest.

    He continued to work after diagnosis-but stopped when treatment started & had to-mentally as well as physically. It depends on what you do-some people say they continued to when working from home. he has a 45 minute commute & a stressful physical job-but another thing you need to think about is-if your treatment includes chemo you will be immuno suppressed-so prone to infections, so you will need to stay away from crowded places-which may be your work?

    I also took 2 months off-which I needed to to keep him out of hospital-he was stage 3 & never had a peg tube fitted or naso gastric tube so his eating was down to him doing it himself which was hard-& he lost 4 stone. Hopefully as yours is stage 1 things may be a bit easier for you.

    It's all worth it though & he would do it all again to get rid of this-as-like he said what choice is there? But he's now well-back working full time.Hopefully you're work will pay you when you're off-if you need help financially Macmillan should be able help you.

    Best of luck- & like everyone on here says-there is light at the end of the tunnel-just keep thinking that-it helps! & people on here are so good-helped us get through xx

  • Thank you to everyone for your messages I am 32 and have a busy job running a team for the whole of Europe and feel like I don't know how to deal with this. 
    can I ask, what was the time line of events, so from diagnosis to surgery to then radiotherapy and this is what I have been told will be my treatment. This is was worrying me. I am so impatient and what this out of me now! 

    i am so appreciative to read your stories and how brave and strong you have all been. I hope I can be the same.

     

    A x

  • Hi Amber thus is one situation where you have no control all you can do is remain positive. Positive mental attitude me through treatment. 

    As for timescale I didn’t have surgery but as s guideline dr referred me 14 May consultant 29 May biopsy 19 June cancer hospital 26 June mask made 4 July treatment started 16 July finished 31 August. We flew to Spain 25 October but I wasn’t working it was pure relaxation. As we say we are all different, one thing to best in mind is with chemo your immune system is compromised. A point to best in mind given current climate with corona virus . Travelling may be an issue for you but am sure you can work from home. 

    The treatment is fairly brutal recovery long outcome good

    Hazel  www.radioactiveraz.wordpress.com 

  • If you're going to have surgery & treatment you will need time off work-maybe working from home would be an option if you can?

    Yes you will want to get going with it all-but all the planning which Hazel has said does take time & you have to be patient-(which is hard) while you are waiting try to eat alot & pile on the calories!! As you will lose weight.

    Best of luck xx

  • Hello everyone.

    I have just finished 12 bouts of radiation treatment for throat cancer over a 7  week period in Scotland.

    I understand this treatment regime is pretty unique.

    I have now been given an appoitment for a follow on assessment some 13 weeks after my radiation treatment stopped.  I was hoping for it much earler.  Does anyone know what the normal time period is ?

    David

  • Hello David

    13 weeks following radiotherapy is normal and a genuine reason for.

    The neck will still be red and buring and there has to be a time to allow the cells to heal in order to get a proper assessment. 

    Doing any assessment sooner would be counter productive.

    If you are anxious about waiting, I would speak to your consultant and/or support team who will explain in more detail, but it is a normal timeframe we all had.

    Hope this helps

    regards

    Ian

  • and hi to all, if there are any who come on as a blast from the past...

     

    I hope you are all doing well and keeping well.

    I still in regular touch with my mate Hazel, who has so much wisdom over everything and is always right. ok slight weakness in spelling, but that apart.

     

    Seems such a long time ago but I was grateful for this thread in times of need and enjoyed the community spirit that it brought a lot of people.

     

    Onwards and Upwards and to infinity and beyond......

    Ian

  • Ian 

    Thank you for your kind words you may see  my spelling has got better lol. Ps took 20 mins to type this lol..

    Yes I am almost 2 years post radiotherapy where does time fly to?

    Good luck to everyone and like Ian will continue to help while ever anyone wants it.

    Hazel x

  • Hi David I too had 7 weeks radiotherapy along with 2 chemotherapy sessions .My pet c t scan was at 18 weeks the longer it’s left the better as hot spots can show if done too early. The radiation keeps on working after treatment ends,in my case my uvulva melted well after treatment had finished. So don’t worry you’ve come this far .i have a blog detailing my experiences includingbrecivery I am almost 2 years post treatment now .The blog has links to others along with links to throat cancer sites.

    www.radioactiveraz.wordpress.com

     

    good luck onwards and upwards Hazelx