Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Hi Kelly- Hope you're having a good (ish) day...I too am a 'other half'- but as well as wanting to ish you good luck for your journey ahead...I wanted to say my husband had the same as what you 'll be having-the 7 weeks radiotherapy & 3 chemos-seems to be the standard here-but hospitals do seem to vary with treatment- & depends on you & exactly what you have etc- but the 3rd one is ? how effective it is so don't worry if you don't have it-lots don't (due to not feeling well enough).Is that the trail treatment? Anyway-thinking of you & you're family-but you will get through-just eat lots of fattening  (nice)stuff before the treatment starts as most people lose weight.

    Have a nice weekend Joy x

  • hi Kelly good luck for Monday like joycsays 7 weeks isn’t unusual that is what I had plus was down for 3 chemo but only ended up with 2. Try and enjoy your weekend and eat eat If u can. Any questions just ask and getbthrough those box sets xx Hazel x
  • Hi Lori

    Keep chin up and think positive as you can.

    Looking back at journey you get over and come out the other side.
    Of course its chalenging at times but trust in us, it does get better and you will soon be seeing the light at the end of the tunnel.
    And good for you re onwards and upwards...its been one of my saying from the start and I did paraphrase Buzz Lightyear (frsit toy story still the best)

    And yup I did indulge in lots of retail therapy while recovering and bought myself lots of well desrved presents. 
    I've been positive throughout and I do believe it helps, even when facing some side effect challenges always remember the light at tunnel is waiting for you.

    another mantra of mine is to drink, drink some more then drink again.
    I wont be told otherwise that water is one of the best medicines.

    Please keep in touch and keep us posted on your progress as we are all rootting for you.

    Holler if you need anything and we are only a message away.

    Best wishes....

    and of course.....Onwards & Upwards..to infinityyyyy and beyond.

    ian

  • Thanks Joy. 

    Yeah it’s part of a trial so it is optional. It was between that and immunotherapy. 

    I’m a lot better today, I feel I’m all prepared for what’s going on then something changes and it sets me back a little bit. 

    I start my treatment on the 16th so will be having as much lovely food as I can before then! 

    Enjoy your weekend too x

  • Thanks Hazel.

    Had another read of your blog last night which helped. 

    Ive got a week before I start so intend to make the most of it!

    Got a few box sets in mind so will get that organised. Was  away pyjama and slipper shopping today :D

    Kelly x

  • Hi Kelly

    no problem glad the blog helps,anything you want to know just either send me a friend request or ask on her someone will always get back to you. Eat magnums thus week I put a few pounds in eating the double caramel ones. Naughty but nice. 

    Show your family and friends to the blog as well so they’ve an idea of what you may face ,just remember we are all different and our treatment is specific to us we aren’t a one size fits all type of cancer hence why the masks and numerous radiotherapy sessions. But looking in here we are proof tha there’s light at the end if the tunnel, just a few bends in the way to the other end. Once treatment starts you’ll get into the swing of things, on your weekends hime let everyone pamper you as well.

    keep in touch Hazel x

  • Hi Kelly,

    Good luck with start of treatment and in many ways its good to get going instead of all the waiting about.

    Try and keep as postitive as you can as I believe its really helps.
    Try and drink as much water as you can as not only keeps you hydrated by uses throat n neck muscles by default. My mantra on here has alays been drink, drink again, then drink some more. Firmly belive water is one of the best medicines.

    Hard shout about being away from homw but you will be well looked after 24/7.
    This may sound like an odd bit of advice but I was hospitilised last year for a week due to mis diagnosis and on the second night I had my own pillows brought in.
    Hospital pillows are so not comfortable, lumpy and thin in my experience.
    I've been searching for the perfect pillow all my life, tried expensive,bamboo,memory and I've found the best ones to be Silentnight Feels Like Down.
    Just a suggestion but I would strongly recommend your own comfortable pillows if you are staying in hospital for any period.

    Just holler if you need anything as we are just a message away and are all rooting for you.

    Ive re posted my blog for ease of reference and logs my journey each week.

    radiotherapythroat.home.blog

    I also kept saying there is light at the end of the tunnel and its waiting for you and you will get over the challenges ahead.
    Good luck and best wishes.

    Onwards & Upwards

    ian

  • Thanks Ian.

    Good shout about the pillow, mightbjust get myself one! 

    Yeah im in the best place and it’s not forever, hopefully will pass by quickly! 

    Thanks again :)

    Kelly

  • Hi All,

    Quick update ...

    Was at consultant check up today and all good and he is really happy with way things are going.

    No issues and all looking good from scope and feeling neck and looking back of throat.
    Told me that as over a year since diagnosis and all good he is now going to put me on 3 monthly checks.
    I think different timelines for different consultants/hospitals/locations but just to advise you do move to less frequent check ups.

    Am back working, at health club at least 3 times a week and diet is full of healthy eating and havnt felt this good in years, even before diagnosis.
    Still drink plenty of water every day !!!

    Still some dental work to be completed but all good and also booked holiday for my beloved Tenerife next year..

    Good news story after a long haul, but hope inspires others and I do keep repeating but the light at the end of the tunnel is there for you.

    Best wishes no matter where you are on journey.

    Onwards & Upwards

    ian

     

     

  • Hi Ian

    brill news what a difference a year makes ,like you say even within the same hospital different consultant s have different time scales. I was 1 year  post treatment  2 weeks ago that’s when my consultant said every 3 months for my check ups. Yet another Guy we met during radiotherapy he’s been in 3 months since May same  cancer same treatment ,so anyone out there don’t worry like we keep saying we are all different. .

    great news ian re holiday this Time next year as Del Boy used to say .

    anyway people reading this in years to come  will see there us light at the end if the tunnel.

    onwards and upwards to infinity and beyond.

    H xx