Hi

so aren’t they doing a pet ct scan  at all ? Mine was at 16 weeks post radiotherapy.

re blocked saliva gland find an old fashioned sweet shop and get/something called toxic waste ! It’s super super sour our grandson gave me one the other day not to be recommended as a sweet if choice but it gets the glands moving. 

Re insurance what ever you do don’t  tbtry and do it online you just won’t get enough room to write everything down ! Lol

this  is one occasion when ringing is deffo better .

because we go for periods  longrvthan 3 weeks the best for us was b u p a  ok cancer is excluded and everything associated with it but seeing as I ain’t planning in keeling  over with it and if I needed to would jump on a plane and be home within 3 hours .

we have friends who were treated  with me and they’ve been away for 2 weeks using boots the chemist insurance think £58 for a couple again cancer excluded but ringing you can ring  explain what type of treatment etc .

last year  I used insure ans GO but this time  wouldn’t cover me for extended period but worth a try for a 2 week holiday.

onwards and upwards as Ian says and yes water water and more water.

Hazel x

Thanks Hazel- & no-no scan! I have read loads on this & some places don't so I'm not 'concerned' & I've read they can see any cancer by physical examination & if anything suspicious starts then they look further-scan, ultra sound, bloods-whatever.

Of course there's cancer that  physical exams sometimes can't see, but think the arguement is- is that scanning isn't something you want to be having unecessarily either or too much of after all the radiotherapy as that has risks too. They said the appointments will be every 6 weeks now for this year (12 months post treatment)-which seems alot but I get why.

Thanks for the Insurance details-will phone them! We're only going for a week so hopefully won't be too expensive.

Haha will look for some toxic waste! (Never thought I'd be saying that on here!!)

Thanks again xx

Hi Tina, wonderful news about your husband. I’m supporting a gentleman who finished his radiotherapy just over 2 months ago. I know everyone is different but he is still finding it very painful to swollow sips of water throughout the day (some days are better than others). I just wandered when your husband started to see a difference in this area please? 

Thanks, Jess. 

Hi Fabbybdan dozy  good you honour us mere mortals publicly lol. Only joking my mate as we do keep in touch regularly.ps xyiimelts at night time they really do work yiu need to have some saliva for them to work but give me at least 4/5 hours before needing a sip of water  Got 2 more acupuncture sessions do I think they’ve helped my saliva yes I do maybe physiological but don’t knock it  

can only echo what Ian says about repeat prescribing yeah it’s good we can re order but at what expense I was given omaprozle in January for poss acid reflux thinking  my g p was clutching at straws when I went up and have been in them but have gradually weaned my self off from 20 mg a day to 10 mg and now off them I have no acid reflux symptoms so did I need them was I displaying side effects from the radiotherapy possibly but justba word if watningbto everyone like Ian says just be careful.

anyway won’t hog the limelight suffices to say  31 August it’s  my one year anniversary of finishing treatment !!!! Where’s that time gone ! So to any newbies reading this in years to come remember there is light at the end if the tunnel plenty of us on here been there done it got the t shirt read the book. 

Keep in touch onwards and upwards to infinity and beyond!

Hazel aka RadioactiveRaz www.radioactiveraz.wordpress.com

Hi

an sure all will be fine try b chill out until then let us know what they say 

Hx

Thank yo for the kind words Elbie.

Sure you  will be fine but let us know how you get on at ENT

I think your right - I am worth it

Onwards & Upwards

Ian

Good luck for Thursday, I'm sure you will be ok & I second when you said hazel & Anchor were there for us in our hour of need- thanks you two-worth more than words can say x

Muchos gracias in the words of Tesco every little helps !I know both Ian and I have gained a lot of pleasure in passing our knowledge on ! Plus know both of us would have preferred not to have been in position in first place ,but have made some good friendships through it !

Hazel x 

Hi all-Just to say firstly... hope all went ok today Elbie?

I know Hazel- it's a pretty *** thing for you (& others) to go through but you & Anchor turned a very negative thing into a very positive thing & as I've said before (probs getting a bit repetative now-sorry) I (& others) are really grateful.

Finally- Joe got a scan! Today-not a routine post treatment one-as I mentioned here (Merseyside) they don't do one-just have regular physical check ups-so after his salivary gland kept blowing up on & off he got an Ultra sound- no nasties- just reaction to radiotherapy, said the gland will probably just disintergrate but meanwhile it was reassuring to know lymph nodes looking good-clear.So I feel today is our day of celebration-so Yayy for Joe. Like a weight being lifted-will relax now on our long awaited holiday to Greece in 2 weeks- so very happy :-)  :-)  :-)