Hi Ginny

glad Chris doing well. Onwards and upwards we can only deal with what we’ve got we are all different no one has the same diagnosis reactions to treatment and recovery. I can still hear the words 10 to 14 days and you will be almost back to normal lol no one I know is anything like that. We all have our own issues. 10 month onnsnd my saliva cannot be classed as normal. Butvtry ti explain to anyone who hasn’t experienced it I get comments yeah but you are all clear. Yes I am sndcsm grateful but I wish I knew or could remember a normal function like eating   Moan over. Off out on my bike last day away today. U.K. Tomorrow. Brrrr 18 degrees 

keep in touch 

Hazel xx

Another positive update epecially for those at the start of all this. Not posted in a while but had great personal messages and info from RadioactiveRaz aka   Hazel, and Anchor   aka Ian.

I am just out of my results from 1st petscan and everything looking good. 

I am now 19 weeks post treatment of 33 radiotherapy sessions on  vmat. I did it in Spain (mods thankfully let me join this amazing resource). My diagnosis , after removal of a cyst,  turned out to ne a lymph node in my neck with squamopus cell hpv16+ cancer.

Treatment handled well, no tube, some dry mouth, bad skin reaction. No doubt about it, the help on here is amazingly good and therapeutic.

So good luck to everyone, update again when i have anything, im here to support sufferers too in any way i can,   pepare yourself, give it all you got, share your fears here, people really care. Graeme.

Hi 

onwards  snd upwards from here job done Keep in touch

h xx

I I remember your first postings look how far you’ve come

 Like you say we can all help each other 

h x

Great to hear so many are recovering well, I’m 22 weeks post treatment, tumour removed from tonsil, 30 sessions of radio, in the last week Iv become ravenous and can’t stop eating and putting a few pounds on so i’ll need to watch that because I want to control it. Still getting some gunk at the back of the throat but my saliva is pretty good now. I’m not thinking about what’s happened so much now and putting it behind me, playing football 3-4 times a week and slowly gaining my stamina.

Dave

Way to go Graeme and made my day !!

I've PM'd you.

Onwards & Upwards

Ian

Hi Ginny and Hazel

Thank you so much for thinking about me. So since last Friday I've had appointments every day and I've been told that the outcome will be the same as the HPV positive as long as there is no smoking ever!  I've not smoked since mid May and it wasn't that hard as I am a very light smoker. I won't lie though at times I do really want one but I just ignore it.

On the plus side of smoking and only because I've smoked I've been put on a clinical trial which begins on Monday. Alongside the standard 3 sessions of Chemo and 35 sessions of Radiotherapy I will be given Immunotherapy.

The Immunotherapy begins on Monday and the Chemo/Radiotherapy begins 3 weeks after... Bittersweet as I would have been half way through the standard treatment then as it was starting on Monday. 

I'm going to order the xylmelts and toothbrush that Hazel has posted about and buy some tins of custard to keep just in case. 

So that's me all up to date now and I believe that I will be starting my treatment along with Heddy which I'm so grateful for

Thank you xxx

That’s wonderful Lillie . Don’t beat yourself up about smoking I’m sure most of us have  done it at some point in our lives . My husband gave up over 20 years ago and the original doctor said smoking is the cause unlike the oncologist who said no one knows in truth as many people who have never smoked get cancer of the throat .It’s not easy giving up so very well done . You need to treat yourself with something nice for your efforts . You sound more positive so that’s brilliant as it will help you get through this. Hugs Lillie x x 

Dear Lillie Sunshine - you do indeed sound more positive.  So so pleased to see your message here.  Love you girl even though I haven't met you  xxx

Thanks dave for your update- nice to hear you're doing well & to have the information on what's ahead-regarding the 'mouth gunk & saliva' situation! This sites so helpful- with all the 'warts an all'! ;-)