Hi congratulations did hubby have a pet ct scan ?  In My case it wasn’t  done  14 week s but like we keep,saying everyine I was different. Early on post radiotherapy my oncologist was confident with my lymph nodes going down All was looking good but no more than that. Until after pet ctbscan was done ,but take the good news and enjoy .

Hazel x

Hi I'm so pleased for you it's fantastic news 

You're at the end of your journey and I'm at the beginning

It seems that everyone has taken their illness and treatment in their stride whereas I'm absolutely terrified

Take care and good luck xx

Hazel- The ct scan is in another 6 weeks-so 12 weeks post treatment here, which is when I thought we weould be given the result, thought today was just a check to see how he is healing etc, but the oncologist made out today was 'results' day-if that makes sense...? He siad theres no tumour (looked with nasal scope), felt around neck for any nodes -my husband didn't have any affected at any point- & looked in his throat-all clear so I guess it was results day? The scan is to 'follow up' now-for the next 5 years, we just didnt realise today was such a big day. We will just enjoy what we have for today :-)

Lillisunshine- I think people did feel as you do & come here to talk about it & to get support from others who know what you are going through-it's atough treatment but it's something you can get through-from what i have experienced with my husband & what others say on here. Also hearing the success rates it's encouraging for those going through the hard times-Good luck to you too-you will be ok-as others are xxx

Like you he’s on omeprazole - has doubled up, restarted the domperidone, knocking back the gaviscon and sleeping on a pillow mountain which does seem to help.   No other meds fortunately.   Simple food and not complex mixes of tastes work better, which fits with the food of distant years!  He does get tired but it’s not surprising as he’s back at work full time now..... 

its been a real help having the online support on this forum - our consultant told us to look at it, thanks to all of you for sharing your experiences.   

To the cancer supporters -  WAGS and whatever you call the male version (HABS maybe!) - hang on in there too, reading the stories of the supporters its clear we all face the same challenges.

On a different note I read recently about the HPV vaccination programme being ready to role out to boys  now, but no catch up for those that fall outside the year group.  Strikes me as a missed opportunity.

Yes, it was a major issue for my husband - he was on all sorts of meds, the final one they added in was aprepitant.  I think it made a difference.  The others he had were ondansetron, levomepromazine, domperidone, omeprazole, dexamethasone with the chemo and not to forget the travel wrist bands which definitely helped a bit.  It subsided gradually after treatment finished, almost gone at the 2w stage then the silent reflux kicked in! 

Hope it settles soon for him

So pleased for you both, nice to be able to look ahead now!:)

If we can’t say the name then I can only say the main hospital in Norfolk!  They have been fantastic all along.   

Boots offer the vaccine also, £600 is a lot to pay but worth it knowing what the consequences are. 

Thank you :-) xx

Hi

i was Leeds main cancer u it for my part of Yorkshire. Yes they all do a wonderful job. Difficult decision re vaccine 

H x